Anxiety is through the roof

Hi

just wanted to say that you’re not alone and I feel exactly the same way. Had my last chemo on Wednesday and expected to be elated but just feel it’s a matter of time now and it’s horrible.

I hope that, as time moves along, we find it easier. I tried counselling but it didn’t really help. I think get anxious about being anxious and the added inflammation it causes. The unknown with it all is just awful.

xx

How easy would it be to say “stop worrying” but my strategy is to mentally ‘step outside of myself’. I check my remaining breast in bed at night once a week and from then on don’t go there. I blame chemo on any aches/ pains/diarrhoea/constipation, etc and know that we’ll never be quite the same as before the invasive treatments BUT “that which we fear, shall surely come upon us”!  I’m not overly religious but my dad used to say that so Ive learnt to stop thinking negatively. Try to move on from your thoughts, even think trivia like “what shall I wear tomorrow?”  I hope you find peace, it will come in time xxxx

Hi, I am exactly the same as you and Hel39 stage 3, large cancer and 7 positive lymph nodes.  It is a constant worry.   Every ache and pain makes me anxious. It's just bloody awful and I feel that if I think it, it will bloody happen yet so difficult to change the negative thoughts to positive ones x

Hi there, I feel exactly the same ️. I was also stage 3 with 27/27 positive lymph nodes. I haven’t seen anyone on here with this number which really scares me. I finished active treatment in December and am on my 3rd type of hormone therapy and mostly feel knackered and in pain. I agree that we need to take stock and be positive, but my goodness it is hard. Everyone tells me it is very normal to feel anxious about it coming back, but personally I don’t find that very helpful! I think it’s a case of over time these worries, I hope, will ease x

Hi Helbo

yeah, it’s nice to have the feelings validated but it doesn’t help, you’re right.   I have seen someone on here with all lymph nodes positive,  who I think is a few years clear….but I don’t know how many it was. Though I suppose it doesn’t matter if it was all of them…it’s still a positive story.   

have you struggled with the hormone therapy for them to keep changing jt?

wishing you all the best. Xx

I can’t change them….I’m hoping with time….but it’s really hard. Xx

It was a user called galligirl. You can see her profile regarding the nodes and she’s four years clear. ️

Hiya yes I had problems with Letrozole and worse with Tamoxifen but just started on Exemestane so hoping this will be good for me. I love a positive story so will check this warrior out! Thank you xx

Hi Helbo

I had 19 out of 24 positive nodes grade 2 stage 3 also. So I get everything u say. That was 3 years ago now. I can say the anxiety and worry becomes a little less but hasn't gone away for me anyway. And having extensive medical knowledge definitely doesn't help either ! 

Xxx

Is this because you feel you’re more aware of the possibility of late relapse, when you say about having medical knowledge? Or do you mean something else? I kind of wish I hadn’t read as much and had just gone with the five year stats they told me to look at. Too late now though xx