Zoledronic acid

Former Member
Former Member
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Hi

I have been having Zoledronic acid infusions every 6 months since October 2019 but when i went for my last appointment i was told by the nurse that my Oncologist said i no longer need it due to new guidelines but it was up to me . After a discussion i decided to go ahead as it was my 6th infusion,but i would have liked to have been informed before my appointment as to the reason for stopping it. I rang the sectretary in march and asked for an explanation in a letter but i have not had an answer.  

Has anyone else been told to stop and also do i need to take calcium and vit D now for my bones. I should have an appontment with my Oncologist in October i will obviously ask her about it then.

Thank you.

  • Hi  

    I had no 6 last month thinking my last but got told onco had prescribed 7 not 6 . Will see her in August and will ask but I think it’s a mistake as always said 6. I’m not aware of any changes to the protocol of three to five years of infusions .

    I was prescribed Adcal  for vit D at the same time as infusions two per day but my calcium got too high so one per day .

    hope you get it sorted 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • I've been prescribed it every 6 months for 3 years (though not sure if that means 6 or 7 infusions). Did it used to be 5 years?

  • Former Member
    Former Member in reply to Northerner

    Tnak you for your reply, i will try to speak to the secretary about vits. xx

  • Former Member
    Former Member in reply to Beatthebreast

    i was told 3 to 5 years but i think its changed to 3 years now. xx

  • I was told 3 to 5 yrs but most probably 3yr every 6 month I presumed that meant 6 so did chemo unit girls but when they  checked she had prescribed 7  . Checked my record book and first one was in Nov 2019 so  3year would be Nov 2022 so 7 would be correct . Think I’ve decided to ask onco when I see her but will go for it …one more can’t do me any harm 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • Hi

    How soon after chemotherapy did people start this treatment? I signed the consent form today and emailed over my dentist consent also…the oncologist just said the timing wasn’t that imperative so I’m just curious how long people waited.

    thanks 

  • Hi 
    I had my first one whilst stil on chemo then 2&3 when on Herceptin  4,5 & 6 on their own 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • Former Member
    Former Member in reply to Hel39

    Hi I started as soon as my radiotherapy had finished.

  • I was also told every 6 months for 3 years, I assumed that was 6 infusions, but you're right, it could also be 7.  I take calcium and vit D tablets daily

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  • Former Member
    Former Member in reply to Irishgirl16

    It's a bit confusing if I had decided to decline the last infusion I would have had 5 !! Do you but the vitamins or are they prescribed for you?