Had a surprising call from Onco today, still in shock really, I mentioned I had some neuropathy in my fingers last week, but better now, he said there is a chance this can be permanent and also mentioned that my ct scan showed I have a fracture in my spine that may, or may not be caused by chemo, or osteoporosis, or from the psoriatic arthritis I have had for years, but wasn't there in my Jan scan, so it's new, and that he now recommends stopping chemo, after 10 out of 12 completed, still to have 15 x radiotherapy treatments, then I will be started on letrozole and calcium, vit d, plus bone infusions, and also the new drug treatment that has recently been approved. looking on Google it does say chemo can cause fracture of bones, never heard anyone on here mention this!
not in any pain in spine so I was very surprised.
I think overall its good news as the new drug cuts the chance of reoccurrence of the cancer I had to just 6 per cent. I had mixed lobular/ductal 3.1 cm tumour right near chest wall, 5 of 11 nodes infected. he said 4 or more nodes and you can have the new drug. Had lumpectomy in Dec last year, followed by 6 months of chemo which I must admit I've had enough of but was determined to see it through.
lots to take in. hope everyone is doing well xx
Hi Hev
glsf to hear they are cracking on with this new drug. I am also eligible - please let us know how you get on with side effects if you don’t mind? I am curious how it will be for going back to work at the same time….worried about the upset stomach it references but I am keen to take it for reduced recurrance risk.
which hormone therapy are you having with it? Do you start straight away?
x
yes of course I will let you know and vice versa? I think he said once radiotherapy done then I will start the tablets. it was a 40 minute call and although I scribbled furiously I didn't catch it all or even understand it all. he wants to see me face to face to go over it all again but is is away till 25 July. I am currently wfh reduced hours but will be returning to very pressurising work environment at some point which I'm kind of dreading I don't feel anywhere near ready. I work in a extremely busy emergency services call centre doing shifts. its not like I can just run to the loo mid call ......Good luck with your treatment x
Thanks and yes, of course, we can swap notes. I too work in a very pressured job and I think I need to start doing some hours around radiotherapy. I’ll be glad if the distraction but very worried how ill cope and if I’ll have ongoing fatigue, brain fog etc. xx
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