I am secondary HER2+ (liver mets), I have had 33 3-weekly treatments so far...I think I have a worse reaction to the new injectable drug (Phesgo) or maybe its just the toxicity level that has built up through so much use over time?
After every treatment I get a massive head ache, diarhhea, a rash and feel so tired I go to bed for a couple of days. I am also getting short of breath very quickly.
My onc has suggested I take injectable steroids alongside the phesgo, and prescription anti-histamine.
The first time I had these drugs (herceptin and perjeta) it was via an IV line. I threw up, got a head ache and started shaking violently (rigours), I think this shows I have always been allergic to the treatment? But it seems to be working as my cancer is stable.
I'd be interested to hear if anyone else gets side effects with phesgo?? Thanks.
Thanks, good suggestion! I used to have the slowest IV drip possible but then moved straight to 5 minute injections! I will ask for slower....
Bless you, sending love and I hope you find a way to manage all that. I remember those days of multiple drugs but now I'm only on the phesgo so I know its that causing the problem. I think docetaxel is the worst, I def felt better when I stopped that. Hope you do too
