Hi everyone
This is my first time posting on here. I had HER2 breast cancer with mastectomy, lymph node clearance, 6 x chemo and 15 x radiotherapy and I have just had my last herceptin and pertuzamab injection
My hair has grown back like a curly mop, my nail still snap off in the slightest breeze and my eyebrows are growing back in ten different directions but I couldn't care!
However I am struggling with menopause symptoms which I believe come courtesy of Tamoxifen. I have chronic urges to go for a wee when I don't need to go, I've had countless UTIs and cystitis, have been hospitalised three times with haemorragic cystitis and am on antibiotics every few weeks. I rarely have more than 90 minutes sleep in one go each night as I am constantly woken by hot flushes and sex is so uncomfortable I'd rather clean the oven.
I know HRT is out of the question and don't want to even risk it even though I follow the menospause doctor Louise Newsome on instagram who says it's not.
I mentioned these symptoms to my lovely chemo nurse the other day and she rang me yesterday to say that thinking has now changed and I could try to use a low dose vaginal
oestrogen cream (Oveston?) to help with some symptoms. I could have jumped for joy but now today the worry wombles are kicking in and am thinking it could pose a risk.
So what I'm trying to ask in a very roundabout way is if anyone else has been HER2 positive but has any info/experience about using vaginal oestrogen cream.
Thanks so much everyone, much appreciated.
Keep smiling x
I am using Replens, which is oestrogen free, so that might be worth a try first if you are worried. My oncologist did. also say if that doesn't work then “quality of life” was important and we'd look at alternatives.
And I empathise with the curly hair, dodgy nails and half regrown eyebrows!
I tried replens, which was good and am now using regelle as I prefer the application method (single thin tubes, rather than thicket multi use applicator).
Both are hormone free and have made a massive difference to how I feel there. Why don't you give those a go first before hormone creams if you are worried? Research shows they can be just as good at healing and moisturising and I have certainly noticed this.
For UTIs/cystisis, look into pure d-mannose. Endless cycles of antibiotics are not good for your whole system. You might want to take a course of probiotics too to get your system back on track after antibiotics.
Replens also do a single use by the way, but i might also look at Regelle, hadn't come across that, thanks
Oh I didn't realise that, thanks. Regelle very similar, but seems to be less messy for me for some reason.
Thank you so much! I've never spent so much money on eyebrow pencil in my life. I think I've done a good job then catch sight of myself in a mirror and realise one is an inch higher than the other! You have to laugh tho!
Thank you so much for this! I am seeing my doctor this week so will definitely mention this. I have been given Sylk lubricant previously but didn't get on well with it and seemed to go through loads of it! I have been taking probiotics and am eating saurkraut. Definitely an acquired taste!
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