Breast cancer and migraine

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I thought I would start this thread in the hopes there might be someone else going through this: I have migraine disease which is a genetic neurological disease. Two years ago, I had several days when I was having more than one attack per day and it was debilitating. Thankfully, I found a charity (National Migraine Centre) who were able to help me without a referral from my GP and they have helped me to manage the migraines since November 2020.

When I received my breast cancer diagnosis, I spoke to my migraine doctor at the NMC about managing my medication whilst undergoing treatment for the breast cancer. It's a week since my operation and I am having a virtual meeting with my consultant on 15th to discuss ongoing treatment. Yesterday afternoon I had a migraine with aura and needed to take a dose of paracetamol. I fell asleep quite early last night but woke again at 5.15 with another visual aura and decided I had better take 2 more paracetamols to help with the pain. I still feel dreadful.

Thanks for reading. My husband is being very helpful but I'm not feeling able to do much exercise today.

  • As long as you are keeping all the doctors aware of what each other is doing, you should be safe. The amount of paracetamol you describe sounds very reasonable too, and I wouldn't be surprised if painkillers are part of your post-surgery advice anyway.

    The exercises are really important, it makes a huge difference, but the leaflet I have here does say to do as much as you can. Hopefully you can get back to it soon.

  • Thanks Hearts️ Today I managed one round of the exercises. 

  • That's good, it will keep you going for now. It's hard enough having to deal with breast cancer by itself, let alone on the background of an already existing difficult condition. I hope the rest of your recovery goes well.

  • I don’t know if this is relevant to your situation but general anaesthetic can play havoc with neurological conditions and hormones (which can also affect migraines). In my case, I haven’t had a migraine since so maybe it can go either way? Anyway my neurological pain syndrome flared up really badly after surgery (it’s in my foot) and that’s what my surgeon told me. Hope you are better soon

  • Thanks Anabrock - that is very helpful. Has your NPS gone or has it stayed the same?

  • ! I have been thinking about you; how have you been? How are you?

  • Well, I have something call Chronic Regional Pain Syndrome in my foot, which I’ve had at least 10-15 years. It hasn’t gone away but the acute exacerbation after my surgery (boob surgery) has died down now, thank goodness. But it took 3 months!

  • Hi Grey, thanks. Cancer wise I’m doing well, currently cancer free. Still have some way to go with reconstruction and I’m thinking of not doing anything more with the odd shaped left breast (which was reduced from a D to a B). I’ve got lymphadema in that armpit so I don’t want to poke and prod more. The other breast is an implant which is a bit misshapen but doesn’t show in a bra. I was thinking of having a nipple made, but it’s not a priority. My mental health has taken a hit and I’ve got major fatigue, brain fog and nerve pain, but I blame some of that on Tamoxifen and the rest on menopause 

  • I'm glad you have some respite from the pain.

  • Thanks for the update, Anabrock.