I'm so upset, so I've got low neutrophils 2.15 ,.I'm I'm only onto 2nd session of my first 3 week cycle.of the pax
I asked my oncologist for the white blood cell count injection she said no. I took it during EC I was above 2.1 and they said that was low ,I was having the injections then so why can't I have it now is my question?
I was 4 on my 1 session of the pax ,then a week later down to 2,1
All I got on EC was urine infection / covid so I'm not a strong body when it comes to infections it seems
Why are the denying me something that will help me ?
T️he nurse said oncologist said no your at an increase risk of infection.
I've PTSD , I'm being forced into a state where I could easily go down low within a week & be ill.
I just feel like quitting and phoning to say I don't want it as they don't t seem to care or ask for another oncologist, I was happy with the one I have but now I'm very angry.
All I was told to take temp every day,watch out keep good hygiene anything above the 35.5 instead of 38 phone up to acute.
But what low point will they care, I'm loosing trust so fast.
Is there any way to boost these neutrophils via food ??
Hi
I can’t answer your question as to why you can’t have the injections again , only to say that my neuts are 1.1 and chemo been cancelled for this week !! I had a nasty infection and was on antibiotics but the number scares me
I have not been offered the injections either , they want to see if my body will recover and numbers pick up on wbc… feeling similar to you on that one too but would prefer not to have the injections but will if they say
I am eating more proteins , fish / nuts and plenty of veg , fruit and smoothies ( I say plenty , just as much as my appetite allows ) and lots of water
Can you call nurse again , you should at least have an explanation
Sending hugs
L xx
hi no magic wand from me im afraid but I do know how scary this is and I understand your anxiety. no 4 of PAX and although my wbc was OK, red blood count was very low , was told i may need a blood infusion if got much lower, scary, had an iron infusion no 5 and today was told RBC is the same, no worse, no better , hoping the iron helps soon. just as I thought was on home run, chemo throws a curve ball....am trying to ensure I eat more meat. it can't hurt to eat better. I'm going to try my hardest to complete the 12 cycles unless they pull the plug , can't do anymore than that. Good luck with whatever your decision is Etna x
Morning Etna
Sorry your feeling so disheartened and upset
I don't know why they are not wanting to give you the injection at mo I would try and see if you can get a better explanation from them
but I wonder if it's because the injection can cause your body to go from very low to high very quickly and that is actually more dangerous according to my consultant and as I now know cause many problems
I don't know if this will help you but this is what happened to me I was low on the Sunday blood test so given them to take home after my chemo on the Tuesday to start taking on the Thursday as normal then had to have my bloods done on Sunday perfectly normal week on the Friday I started to feel more sickness than normal and my legs really hurt this was then followed by constipation like I had never had before this continued on Saturday with my leg hurting and feeling so wrong that I couldn't drive ( now I guess I should have phoned for help at this point but because it was just an escelation of things I had had all through treatment I just kinda excepted it) had to get some one to take me to have blood done on the Sunday 2hours later I got a panicked phone call to stop taking jab immediately as my white count was sky high and whole thing actually started a chain of events were everything got so out of wack I ended up in hospital extremely ill for a week and have had to have my chemo shortened and reduced luckily it's done it job and shrunk lumps enough that the surgery to follow will hopefully now just be a lumpectomy
I hope this helps sending hugs xxx
Ah ok, I had it on the EC and it was this low but I guess that's a different chemo.
That makes sense, I wish someone said to me like my oncologist or the nurse.
I re read my medical records it says 1.5 - 8 is normal doing I'm normal ,I think I'm just in a panic as it's dropped so quickly so I'm worried it will drop even lower.
Thanks,
I've started to eat nuts from yesterday, I'm going to do my best to keep a healthy diet, this week,.
I going to ask if I can take protein with vits & mineral's shake as my weight is dropping fast, lost alot weight on the EC as I just couldn't eat .Im slim and easy to loose the weight harder to put it on which is a nightmare.
I hope you recover well & it all goes ok x
Thanks
It’s so hard isn’t it , that’s a good idea about the shakes especially if you’re losing weight
love L xx
I think the situation we are in make us all worry and look at things we never would have before at least.lets face it we were all going about are normal live feeling fine then either found a lump or it was found on routine scans and then suddenly in a very short time we are given loads of examinations and a huge amount of info /paperwork to take in and make quick decisions on and everyone is different to we all get given different treatment options and react differently to medications and that is the brilliant thing about this forum there are lots of us on here all at different stage so you can ask question and no one is going to make you feel silly as we all understand and sometime we can offer an opinion or some info that might help sometimes we can just offer hugs it all done with love and care which often the medical teams wonderful as they are just don't have time to give if I've helped I'm glad and I hope your soon feeling better and remember we are all here for you even if it's just to say hi take care sending hugs xxxx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007