How to get positivity back?

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I am really in a quandary and don’t know how to get back into a positive frame of mind. Can you help?

When I was first diagnosed with breast cancer in January 2022 I was very upbeat about everything. All I wanted to do was to have the tumour removed and get on with my life. I didn’t realise there is a lot more to treatment than that especially after I was told about being triple negative. Although I initially didn’t want chemotherapy appreciating the high incidence of reoccurrence with TN I accepted chemotherapy was necessary and I still felt quite positive about it.

In the middle of March I had a lumpectomy and all was well and I was about to start chemotherapy and I had an infection in my breast and my scar split open and chemotherapy had to be postponed.

The wound is slow to heal and I was told it could take months to heal and as chemotherapy could not wait plastic surgery was being considered.

During this time I have been taking 2 lots of heavy duty antibiotics. So generally I have been feeling really unwell. I have had to see so many different types of specialists as well as keep attending appointments to have the dressing changed. There has been little time for anything else.

I have now gone into a deep depression and feel I just can’t cope with this anymore and I really don’t know how I am going to get back in that positive frame of mind to take on chemotherapy even though it looks at long last my wound has started to heal and surgery has been postponed and hopefully won’t be necessary.

As I had previously said I started out being upbeat, i tolerated peoples stupid comments with a smile and I was compliant in doing all the right things. I don’t feel like this anymore and all I keep doing is biting peoples heads off who are trying to help me.
I appreciate it is just bad luck what has happened and no one’s fault.

I would love to hear if any of you had felt this way and come out of the other side and how I can get my positivity back.

  • It's perfectly normal after initial spurt of "let's get  on with treatment " to crash ,  it's a big deal being told you have cancer even though there's treatment available and excellent prognosis.  We all understand the biting one's tongue at the crass, insensitive comments that in their effort to be positive and supportive come across as "just a bad cold reality" manner !  No whinging of man flu now.

    Talking in here helps a lot as we all understand and get the ups and downs .  We are all individuals but have a common bond and we support one another .  There's an Awake thread which has been running for 5 years.  Don't try to read back, jump to last post and hit reply .  There's no rules in what's talked about it's just chat on how's your day, what's annoying you etc.  called awake as started by Londonlass who couldn't sleep.  She calls members Fruitloops as we all loopy in one way or another .  Link brlow

    https://community.macmillan.org.uk/cancer_types/chat-breast-cancer/f/breast-cancer-forum/128753/awake/1733375#1733375

    You can also reach out to your BCN who may know of counselling or Maggie's centre.  Plus maybe speak to GP if it's getting too much.  I know other ladies have had sought help from GP when overwhelmed.

    Its ok to feel low.  You've had a difficult time these last 5 months .  Be kind yo yourself xx

  • FormerMember
    FormerMember

    I don't know if I should respond because obviously you want people with the same experiences.

    But I will say up until your breast split open...I have 100% felt like you were on the same journey as I am right now I am...upbeat...etc.

    You woke me up just now...that there CAN BE complications.....

    You prepared me for the complications....so that is going to enable me to realize that a couple steps back may happen....

    I sit here thinking...I'm going to have the lumpectomy and wait for results and have radiation and possibly chemo and DONE

    I wasn't prepared for or thinking about a set back that you have had...just like you weren't prepared...I would assume THAT set back has reeled you into many emotions...as you want to be DONE with it....This too shall pass......

    I want to say because I am still in the positive mindset you were in before this...that I read your post and thought...

    Wow...that can happen to ME? 

    And then I thought SHE is going to get thru this....it is a SET BACK...but it is not a diagnosis of worse cancer SO I have to be STRONG and get thru this if it happens to me.

    So possibly try and see it from my prespective....you feel like this because it was "unexpected" feels horrible...but again it will pass....

    I think it is very FREAKING NORMAL for you to be depressed......

    HUGS!

  • FormerMember
    FormerMember

    I feel for you. No one knows what’s round the corner, mentally, emotionally and physically. I, like you have to-date been v upbeat through mastectomy, 2 x chemos (so far) and 1000 appointments but am dreading going ‘down’. Keeping busy, having positive people around and not talking C all the time has helped. If one more person buys me a book on cancer, I’ll scream!!   Grimacing

  • A book on cancer ? That's a bit of light reading RoflRoflRoflRoflRofl

  • FormerMember
    FormerMember in reply to Grogg

    Friends who think they’re helping…I must buy 1 of them a book on “being sacked for sloppy workmanship”!! Haha!!

  • Joy Joy Joy 

    I have also  received the cancer books , fgs people is it not enough we have it , we don’t really want it as bedtime reading too thanks Rolling eyes 

  • It’s so hard and I really feel you for you . I wish I had something useful to advise but I feel incredibly down sometimes too , I just try and keep as busy as possible and find some humour in things , if I don’t laugh I’ll cry !
    sending you massive hugs and keep chatting on here , we can all help & support each other 

    love L xx 

  • I'm trying to keep busy but feel over whelmed and finding it hard to concentrate on anything and get my mind focused on something else.Anxiey is sky high.

  • I get it , I really do , saying keep yourself busy is easy to say but not easy to do when your mind is working overtime and anxiety is sky high 

    Have you called the Macmillan helpline ? They are really brilliant just for someone to talk to / listen to your concerns 

    L xx

  • No I havent but I may have to at some point.thanks for avice.x