Hi everyone.
So had my Oncology nurse confirm I'm switching over from docxirubicin to paclitaxel tomorrow. A 5 hour appointment instead of the 2 hour I had. Feeling very anxious and scared of changing drugs and being there for so long. Going to take more reading material in to distract me.
Not sure what everyone elses experience of being on the chemotherapy day unit is like right now... mine is still patient only so no visitors allowed in, which I find difficult as the chairs are also positioned so it's impossible to speak to other patients while having treatment and it gets rather lonely.
The nurses are great and occasionally will chat for a few minutes but I know they are mostly busy.
Anyone any suggestions on distraction techniques. I find the constant buzzing and beeps of the pumps annoying so mostly use noise cancelling headphones.
Gosh I sound like such a whinge right now
I going for paxitaxol cycle no 4 of 12 today., my experience has been I have the usual obs first, tempature etc, then go into waiting room to be called....usually 10 m8ns or so....off to my designated chair for the session.., I take an anti sickness tablet first and have an half hour wait, then get hooked up to the good poision and anti histamine which takes about an hour , then a final saline flush. when I was changed from EC they said to allow 3 hours but its more like 2. at my unit they come round with hot drinks and sandwiches , fruit, biscuits, which breaks up the day. there are two chemo bays, one has about 10 chairs, other has about 6 I think. there is a nurse station in the centre so they can watch out for reactions....I have witnessed two so far and they jump in for action really quickly. yes the constant beeping of machines is a bit annoying but personally I quite like watching what goes on. for me PX has been very tolerable with a few minor side effects. The staff are all lovely, they know my name now, makes a huge difference. my hosp is in North Hampshire I don't think we are are supposed to name them. my appt is at 1500. I'll think of you x ps yes there is a fair bit of space between the chairs. but sometimes can manage a chat , have to gauge whether someone wants one or not . x
Hi. Thank you very much for replying. Really appreciate your information. I think it's the not knowing it's almost like starting all again. Hoping I'm going to be able to be able to just get on withhe infusion without hiccups. Bit scared of reactions but I know they must deal with it all time. I think it's also trying to pass time. Hopefully I can have a sleep while there. Good luck with your
cyclr today. Hoping it passes quickly for you .
Im up in the north.(Lancashire) but know parts of Hampshire very well. Take care x
For me, the phone was a good distraction. I installed some games on it, and that kept me going through chemo sessions. Other times, a book, and at times when I was feeling really unwell, I listened to music through headphones, again through my phone.
I have seen people on the chemo ward knitting and working on small laptops, so I'd say anything that will not require you to carry too much with you, even a small pad and a set of coloured pencils to do some drawings if you like.
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