Coming off letrozole

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Has anyone come off letrozole and tried any other tablets please. I have taken it for a year and I have had enough. Are all the others just as bad.  Recommendations please 

  • Its of course your decision to be made together with the advice of your team.

    I came off after almost 3 years due to my pre-existing mild osteoporosis as my surgeon felt the bone health could be helped by exchanging that for Tamoxifen. I still get hot flushes which can still be quite intense, but deal with them, the middle of the night ones being the worst (but that’s not every night).

    i was felt to be at low risk of recurrence, my cancer, though grade 2 ductal, had not spread even to nodes, and I required no chemo or radiotherapy, but had a skin sparing mastectomy with implant (as no rads indicated this was a permanent one). 

    Hugs xxx

    Moomy

  • Thankyou. I’m going to ask gp if I can change to the accord brand as people seem to find that ok xx did you have a break before starting tamoxifen xx 

  • No, I swapped immediately

    i found Accord brand ok

    hugs xxx

    Moomy

  • Thankyou going to speak to gp in the morning x 

  • Been on the accord brand for just over two weeks getting awful dizzy spells. Do they ease do you know. 

  • Hi I’m on Sun Pharma and apart from random hot flushes, not had any other problems, I got them from hospital pharmacy  when they were first prescribed, and oncologist wrote me another prescription at my appointment,  so I have time to ring round some chemists to see if they provide them. Xx

  • Thankyou   Will persevere u til my one year check up 11 th July when I will see my consultant xx