Made the call today. No idea how long wait will be. So up and down, not even sure if anyone can really help. No one can promise me I won't have long term side effects from chemo, Radiotherapy, Herceptin injections and Anastrazole. No one can promise me the cancer won't come back as HER2 positive and OR8. What can they say to make me feel better?
Sorry to hear you are feeling down. You have done so well and provided a lot of support on here for many of us. I hope you get the counselling soon.
I suppose no one can guarantee anything and maybe we are just lucky there is treatment for this disease. I think we all probably just need to take every day as it comes because that's all any one has. No one knows what tomorrow will bring.
I'm not sure where you are just now with treatment but could you get away somewhere for a few days or just do something you enjoy with loved ones. Sorry I don't mean to belittle how you are feeling just trying to help.
Xx
Thanks. Just done Cycle 3 yesterday. FEC. Filgastrim injections from tomorrow for 7 days. Had to ring helpline tonight as low temp most of today. 35.4. Cycle 4 changing to different drug for 3 cycles, plus Herceptin Injections. We have booked to go to Lake District for few days end of May, I do try to have things sorted to look forward to fairly regularly. Luckily we have a campervan with cooking facilities and own loo, so have days at seaside etc. I have a wonderful support network of hubby, kids, grandchildren and friends. What am I complaining about? ....
Just think I need to cry/rant whatever it takes with someone who can offer a way of coping with the long term changes, switch my mind off etc. Thanks for caring. Jo x
It sounds like you have some great things going on in your life.
I had 3 EC and then 3 docetaxil.( now 6 weeks post chemo) .I had a melt down after the first 3 and the oncology nurse said this was usual at the half way mark. She said not only does the chemo give you rubbish side effects but it plays havoc with your hormones.
It's good to have a rant sometimes I do as well then it's pick yourself up dust yourself down and start all over again.
Lots of women have survived this disease and have a good life and we will too .
Xx
Hi lovely
I think the mental impact of this disease is so so hard and I don’t know what I would do without the support in here
I’m also looking at counselling but playing it by ear a little bit at the moment
Let us know how you get on , hopefully you won’t have to wait too long
hugs
L xx
Hi Gander, I think you´re taking a positive and brave step in seeking counselling. As others have already said, the emotional and mental impact of this is beyond tough some days.
And I agree that we can have so many good things in our lives at the same time but the knowledge of, "Shit, I have cancer" is always there and it can make enjoying the usual things much harder.
I think crying and ranting sounds a good way forward. Sending hugs xx
If you are looking then I’d request the referral as I asked three months ago. I was referred for cognitive behaviour therapy and did two phone sessions where they said there was actually nothing wrong with my thinking pattern and it doesn’t really help cancer patients. I have now been referred to an actual counsellor to talk through it like a trauma but it’s a 12 week wait. Might be best as I’m in the thick of chemo at the moment, but you’ll probably be waiting a long time so might be best to get the ball rolling .
all the best xx
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