Hey,
So couldn't socialize during lockdown as covid, only diagnosed in Nov 2021, so couldn't join new groups, meet people build a life , then cancer decided to join into my life and just as life was opening up, my life shut down again
So 2 years in lockdown, looks like another year spent in lockdown for me.
I have one freind but I wanted a chance to explore life do things , only 36.
I'm more of an introvert , & can get along by myself , I don't mind my own company but what I don't like is having to spend another year in a lockdown , I want to go out and do things, but yet having chemo & everything is just revolving around it which I'm getting fed up with.
Yeah I have family, see them, or go out for walks, with my boyfriend , day trips , I just want more then sitting around not being able to explore life , enjoy the summer, meet people, join groups.
Everything cancer related is online too, I'm a face to face person .
It's seems like I don't have many options.
It's either just -join a support online zoom cancer group, help techniques online group.
I did a meet up photography group but now it's I can't go to that as socials are in a pub, can't risk getting an infection because of chemo ,or i have chemo, so can't go and do photography outside because the date does not fit around me.
Then it's fitting in, I feel self conscious, I feel different,.
I'm at a loss of what I can do.
Hi Etna,
I too have found that cancer can feel very isolating, especially with the extra precautions we need to take around covid/our immune systems meaning I have had to suspend my normal hobbies/activites and can only work from home so am missing the social aspect of work too. I have made two new friends though just by chatting to people in my bay during chemo sessions. We linked on social media, have been messaging each other with support and meet face to face either at chemo if our appointments match or now the weather is better at an outdoor cafe when we feel up to it.
We also have a Maggie’s centre linked to our hospital. They are running a wide programme of various face to face activities/groups. I have my blood tests and chemo on the same day with an hour and a half to wait between the two - I usually use this time to pop over to Maggie’s for a cuppa and a natter with the lovely volunteers and anyone else who is around. I feel so comfortable there, I can whip off my hat and hoodie when having a hot flush and don’t feel self conscious at all about having no hair or a PICC line!! It’s only a little thing but I really look forward to this time each week. There are also some smaller support groups not to far away who i have noticed have recently started meeting face to face again too Hopefully you can find something similar local to you.
All the best with your treatment.
Tis x
Thanks,
First time I went it's highly depressing, no music, no TV, not welcoming, sat away from people, glad I had my mum.
2nd time I had my own room due to having covid 2weeks before.Windows don't open ,no music just a medical room.
It's such an awful experience going to chemo it's not made any better by the environment.
My boyfriends blood donating building is more fun then the chemo building, music ,TV, tea, biscuits.
As soon as you walk through the doors to the entrance of oncology you just get questioned what your doing their, someone takes your temperature, it's unpleasant.
I think I found Maggie's center but it's about 45 mins away from me, which is just to much.
I have another center cancer nearby which has grounds open but the support is online,you can go to the actual center but I think all that is the is a restaurant, a library and some grounds , information point.
The McMillan center where I am is just an Information point.
They do a breast online zoom thing once a month but I just don't do well , with zoom stuff, social anxiety, PTSD, shy in general, talking Infront of a group I don't know is more of a nightmare then enjoyment.
I've joined up with shine which I don't go to as again it's all online.
Mayb I might ask in the actual oncology place I go to what their is , but I have a feeling every thing is suspended due to covid.
But I will look, if nothing I will ask what I can do as it's too isolating.
Thanks
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