Hi
How are the above injections given? Into which body part and do they hurt? Jo x
They go into your thigh, they sting quite sharply for a second at first and if you put pressure on them at the end but they don’t really hurt during, it takes about 5 mins, first one is a bit longer but it speeds up. They do it into alternative thighs. I have had 5 now, last time I got a large strange bluish purple mark on my thigh around it and this time I’ve had no pain at first at all as with the previous injections but two days later I gave muscle pain, copeable but present. Otherwise I’m not having other side effects. I get on with my day as normal afterwards and don’t seem to have any side effects. That said I wouldn’t know if they are fatiguing me, you’re knackered during and after chemo and then I had a mastectomy with diep in January, so I was and am knackered all the time! But overall I’d say they’re fine, I don’t seem to have too many problems. My leg has been worse this time but I’m hoping it’s a one off X
Hi GANDER
They’re given in alternative thighs ,I had six I was in unit 30 mins max . The tip I was given was to warm up the Herceptin inyour hands while the unit nurse is sorting herself out . Just rub phial between hands ,it stings less .
Any little helps lol
Thanks for the heads up! Much appreciated. Jo. X don't know what I'd do without this forum
Yes 18 jabs GANDER I finished mine last Dec/jan . Used to joke would have nowhere to go after 18 months of three weekly visits to chemo unit . Still go now but six monthly for bisphosonate infusion x
Youll get there Jo just one step at a time
I've had 6 so far, the last 2 have been given at home as my trust has a company who come out and do them, they're really good and will come at a time to suit you.
Ive found Im a bit more breathless than usual, only over the past couple of weeks. I go for my third heart scan on Tuesday so I'm just hoping my heart hasn't been affected by the Herceptin. In December my heart was working at 68% which is apparently normal. I think if it drops to 40-50% you have to stop the injections.
I've had no side effects with them, it just stings as it goes in. 12 more to go.
I'm up to 14. 4 to go. Having sessions of feeling rather woozy. Not faint. Just rather strange as though I'm going to feel faint but don't quite get there. Sounds weird I know. Any one else on Phesgo/ herceptin felt wobbly at all? This time round my energy seems to have disappeared too. Don't know if either of these symptoms are related to herceptin or not?
Hi Lblodwin
Ive had 11 so far and have felt this time much as you describe. I am also 3 weeks on from having covid so had been thinking it might be that….who knows!
Hi Margaret...ive also just finished the herceptin injections. I went for my review with oncologist who advised I should have zoledronic acid infusions. How are u managing them...the side effects sound quite scary!! .
Thanks
Angela
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