Does anyone else just feel deflated by all of this. Im coming up to a year of stage 4 breast cancer, chemo worked well and i know i should be happy, but its just such hard work, anyone got any pointers?
It’s the unknown with no positive confirmation of complete wellness that’s hard. The key is being occupied. Take up a hobby or perhaps volunteer work, anything to give you time out. I recently talked to an elderly man I see locally whom I’d only ever said hello to. We stopped and I found out he was looking after his dementia wife alone, and only ever popped out to the shop! I now visit and he comes in for coffee! Such a simple act of kindness has made me forget my troubles for a while xx
Yes, I too feel this way. Not all the time, but after nearly a year and a half of dealing with this, and with yet another surgery planned and whatever else, it can get me down sometimes. Distractions in the form of things I am interested in help, as they make me forget for a while.
Some cancers treatments can be "over and done with" within a relatively short time, but in situations such as yours and mine, it's the long haul. At the moment I am focusing on some future plans. Nothing too far ahead, but stuff planned for later this year and which has nothing to do with cancer is helping too.
Are you well enough to go out for a walk or for an afternoon or day outing somewhere?
God I Know exactly how you feel. I’ve been dealing with this for a year and a half, have last chemo tomorrow which I should be glad about but also getting my mastectomy scar opened up again first week of may as I have had 4 recurrences on it. My mri and ct scan show no spread but I just can’t see an end to the breast cancer. Yesterday was a really down day, I stayed in bed most of it, but today I gathered myself together and did some gardening and spent time with family which was nice. Sometimes you just want to give up but have to fight against that and be strong enough to keep going. I honestly get where you’re coming from. Hope you feel better in the coming days. X
I kept finding little nodules on my scar. The first one was a little tiny lump and they removed it…. I was putting bio oil on my scar every day so got to know it! Then i found another one and again cancer. They are baffled as to why this is happening. I’m now going in for surgery to get more of the tissue taken away. Daunting but I guess I need to trust them. Ultrasound shows that the latest one has gone from 5mm to 4mm so that’s good. They are tiny but there. I had initially dcis but these are triple negative so bit frightening. They are going to obviously send tissue to pathology to try and find out more about the cancer and see why it’s recurring! X
Thanks. From what you are saying I am deducing that the original cancer was hormone sensitive. I was diagnosed with triple negative and while at first it seemed this was closing a door to a certain treatment path, I quickly started to see the benefits, and then discovered the new treatments that were being offered for this type of cancer. One such treatment I received was so new they were unable to find out certain information about it as there hasn't been enough time to collect the data.
That you have a second, unrelated breast cancer does not surprise me, but its appearance right on top of that scar, does. I briefly wondered if this second cancer has been there right from the start but too small to catch by scan, but the location is too much of a coincidence.
Hi there. Sorry I have been wiped out with effects of chemo so haven’t been online! No my cancer wasn’t hormone sensitive. I had dcis first then diagnosed with triple negative. To be honest even they who know don’t know why this keeps coming back! I’m seeing my surgeon on Monday morning so will find out date for surgery and what he’s going to do. I know he’s going to reopen scar. All a bit daunting and especially cos I’m feeling so unwell! Chemo really hit me this time. I’ve been floored! Keep thinking tomorrow is a new day! Now hoping tomorrow comes very soon!!! Xx
