Am I being unreasonable?

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Just wanted to have a little rant.

I have a Hickson line that has to be flushed every week with Heparin and was given a box of Heparin ampoules with an instruction to the District Nurse to order more from my doctor when they ran out.  DN told me they don't do that sort of thing, I have to do it, so I did.  Of course you can't get through to the doctor on the phone and I didn't want to go to the surgery with all the germy people so I ordered via their online system as instructed. After two days, nothing had moved so I had to go in to the surgery to ask about it, where they said they needed to look at the request because I had never ordered it before and they might have to call me to find out why I wanted it.... I had hoped that the note I added saying it was for the weekly flushing of my Hickman line for chemotherapy would have helped give them a clue but obviously not, and what have they been doing for the last two days.  They also said that I should make sure I ordered in advance when asking for something new - I thought 10 days was in advance, how long do they need?  Eventually it was marked as urgent and this afternoon the practice pharmacist called to check what I really wanted and I had to send her photos of the box before she would authorise the prescription -which will then take two days to be issued.

I have managed to get this sorted by doing it myself and chasing up on things when they didn't seem to be moving along because it is my "good" week, but what if this had been a bad week, or I was not in a position to follow it up myself.  Today I just feel that when you are actually at the hospital they are really lovely, helpful and supportive but once you are out in the community you're on you own, my doctor's surgery doesn't even bother to read all the notes I carefully add.

Should it really be me sorting all this stuff out or am I being unreasonable?

Anyway, sorry to go, I just needed to get that off my chest.  Hopefully tomorrow I will feel like a nicer person and not Mrs Grumpy! 

  • I had hoped that the note I added saying it was for the weekly flushing of my Hickman line for chemotherapy would have helped give them a clue

    You are assuming they are capable of reading and writing..... I am shaking my head at the people in that GP surgery, but unfortunately I am all too familiar with such things. Same goes for them telling you to order in advance. 

    This is a classic case of one hand has no idea if the other hand even has all fingers, and by that I mean that the hospital tells you the DN would do something, and the DN then tells you she won't. 

    So, regardless of anything else you do, whoever told you the DN would do it now needs to be informed that their information is wrong.

    Second thing, next time something like this happens, call your BC nurse and the chemo line, and ask that they do something about it from their end. This precisely for the reason you mentioned -- what if this had been a bad week?

    It's frustrating and should not have happened. I really hope this is the last time you need to deal with such things. Is there an option to get everything done within the hospital, through the hospital pharmacy? It is, after all, a chemo-related prescription that originated from within the hospital, and talking of which, I would also ask how come the hospital never bothered informing your GP.

  • I cannot believe that a DN said they do not flush hick lines or even check the dressing. Here in Glasgow this would never happen!! I’m a DN and we attend to chemo pumps ( disconnecting and flushing weekly… in between patients chemo. I’m in utter disbelief! 
    There is also a technique of flushing these lines to help prevent clotting in the line. Please tell your Breast nurse

  • I think it was the ordering of the ampoules that was the issue. I would write a letter of complaint to the practice manager and ask the nurses on the chemo unit to give you some for next time

    X

  • The DN does the weekly flushing and changing the dressings etc but doesn't order the Heparin itself from the doctor once the initial supply runs out.  I live near York so the DN does come, but apparently if you live in the Sheffield health area they give you a quick demo at the hospital and send you home with a bag of stuff to flush the line and change the dressing yourself!

    Unfortunately I live too far from the hospital for it to be practical to use the pharmacy there, but I will mention it my breast nurse.  I didn't really bother this time because I thought it was a simple little request that wouldn't cause any problems, how wrong I was!  I wouldn't be surprised also if the hospital HAD informed my GP, I'm pretty sure they just scan and upload the letters without adding any notes to the file.

  • I see … tired myself Grimacing 

    I see though that Bswife says later on that Sheffield patients are left to get on with it after being shown how. 

  • Thats shocking.  They should come and do it x

  • FormerMember
    FormerMember

    Or my lovely its so bad with the doctors lately I feel for u I really do do because my doctors and receptionist really don't help 

  • FormerMember
    FormerMember in reply to Hmfm

    X