Crying and venting

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Hi everyone,

I am due to start my chemo next week Thursday. Yesterday I got really bad back pain (inflamed joint and muscle). Its so bad I can't sit and only walk a few steps. Everything is cramped up. GP gave me anti inflammatory and painkillers. Its a tiny bit better. I know it'll take time for the anti inflammatory to work. But I feel so upset about it. Now this on top of everything. I just want to be fit for next week. And now I can't do my physio exercises either (cording), and getting a pain in my armpit again. 

This back problem is not a new thing but haven't had it for 2 years, and not this bad either. I am cooling it and try to move around, but I am so frustrated. I just want to be normal again. I was talking to my former chiropractor (he's retired now) and he was able to reassure me a bit. 

I guess I am just fed up and getting nervous about the chemo as well. Family and friends keep saying stay positive, you will get through this and you are so strong. But today I don't feel strong at all.

  • I was like this just after my op. Always have suffered with lower back pain, but struggled to deal with that plus after effects of op too. Think my body had just 'had enough'. We need to rest up when all this happens. A lot for us physically and mentally. Jo x

  • Yes I know you are right. Its with things like this that I realise how stressed I actually am. Good to know that I am not alone with this. Sending you a hug and best wishes, Bianca

  • I started to lose my hair yesterday. Was angry but calmer today. Jo x

  • I am so sorry, that must've been tough. As much as you try to prepare yourself its an entire different story when it actually happens.

    I shaved off my hair 2 days ago. But it will be tough when the rest will fall out. The only good thing is I am so much faster now in the morning. 

  • Hi, not sure I can help much but wanted to say hi. I think it's ok to be fed up and frustrated some days and it must be so frustrating with your back pain. I hope it eases soon and you feel a bit better x

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  • Hi B1975, so sorry to hear of your situation, I totally get the misery of backpain, I had spinal surgery in 2012 after 9 years of being bent double. I’m much improved now, but still have the odd episode. I don’t know which chemo you’re having, but I was told that any rheumaticy type pains can be relieved by the steroids they administer with your chemo, so who knows, it may actually help. My dodgy knee felt like a new joint the day after my first chemo and continued to for about 2 weeks after then it started to hurt a little again, but it’s way better than it was. So here’s hoping you get some relief (hopefully soon). All the best xxx

  • Hi irishgirl16,

    Thanks for your kind message. Yes some days are hard, and its often things that aren't even as bad that make me feel frustrated. I know it just takes time for the inflammation to heal and hopefully I'll be OK for my appointment next week.

    It is great to have a place like this, helps a lot to just talk about it.

  • Hi Mazz, sorry to hear about your back pain journey. I did actually forget about the steroids. 

    I managed my back pains pretty well over the years with the help of my chiropractor and gentle exercise. I moved house last year and haven't found a new chiropractor yet as there was no need, until now. But I am lucky enough that I am still in touch with the old one, who is now retired. He advised me over the phone even though he's on holiday in Spain. So now its a matter of patience I guess.

    Wish you all the best too xx

  • B1975, had a picc line put in today followed by my first chemo session. Like you I was upset walking to chemo but when I got there the nurses made me feel really at ease. They really looked after me and none of it is painful at all. I think if you go in with a bit of positivity saying to yourself " I will be ok, nothing will hurt me" then it might help you. After chemo came home had a bite to eat then bed. Makes you tired. Gave me a headache but nothing a good nights sleep wont cure. Take care, you've  got this xxxx

  • Thanks Bobbysgirl, I keep that in mind. Its a good mantra. I think I'll be OK after the first session. I am always nervous before appointments, and they usually turn out to be OK. I have to say all the nurses are absolutely lovely. This is just me getting the jitters.

    Lots of great women out there. Hope your journey continues to be as smooth as possible,xx