BLOKES WITH BREAST CANCER

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Hi    I have recently joined this female dominated cancer world  I have had mastectomy followed by lymph node clearance joined optima trial so skipped chemo and went onto radiotherapy for 5 days and tamoxifen daily. Pain scale: Biopsy 8-10  Mastectomy 3-10  Lymph node clearance 3-10  Radiotherapy  1-10 This is a really hard cancer if you happen to be a gentleman sat in waiting rooms listening to woman talking about there treatments but it is the only way a male can find out the pitfalls of treatments and i would like to thank and apologize for listening in because without this there is nothing out there for males! We are told dont go on internet at clinics but how on earth can you find something or someone to talk to,i personally felt like i had been pushed of a cliff as i could not find a solution having contacted a charity and the internet is all about female led questions. I mentioned this to a consultant and his nurse came up trumps with a male support network at Breast Cancer Now , so any males looking for advise ,support look at this charity because there is nothing out there for males and when you find a post it is usually years old . Thank you  

  • Masks in hospitals are always a good idea, Covid or otherwise.

    I work for the NHS and so far there has not been any communication within my organisation of any sign of a fresh outbreak.

    It makes sense that if one person in the household gets it, others in the same household have greater chances of catching it.

  • If it’s any help, I avoided it for over 4 years, was ultra cautious as I’ve a rather brittle asthma and would normally need steroids and antibiotics at least a couple of times each winter but not since Covid hit. Daughter is classified as ultra vulnerable due to a huge treatment burden.

    Who brought it to me? Her! She had a ‘slight cold’ (her words) when she came to stay for a few days. I began symptoms 2 days later, 3rd day tested positive, (she did too much to her surprise but negative a day later) I was due radiotherapy 2 weeks later, was prescribed Paxlovid plus antibiotics. but I did get the radiotherapy on schedule. So very few folk mask any more, even in cancer units. I feel I’m a lone masker! 

    Hugs xxx

    Moomy

  • Well its that time of the year again.No , not xmas,its my 3rd year mamogram next week at hospital where this all started.Its like returning to the scene of an accident,all the ladies waiting to be called in,the lucky ones going straight out after appointment with surgeon and the unlucky ones having to return to there seats.Its so sad watching this and i really feel sorry for you ladies going through this.As it has been said on this forum many times it is the waiting for results,the letter coming to your door and the relief that you dont go back for 12 months phew! You ladies go through so much and some of the stories and comments on this forum is the reason so many keep posting.Kind regards 

  • Wow, 3 years already! Good luck,  and hopefully everything will be fine:)

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Hi  , it’s such a mixed bag of emotions, the annual follow up, I’m always glad to have the surveillance but it does reopen that can of worms that is a cancer diagnosis! Good luck with it, will be thinking of you next week. Xx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Good luck! You and I were diagnosed at similar times and started posting around the same time too I recall. Well, you’ve been through very much the same as we have and been there for the other men that have found themselves in our club Heart will be thinking of you x️

  • Hope everybody reading this forum had a good christmas and are looking forward with hope.It always amazes me when some unnamed expert comes out with utter rubbish what they think causes cancer or what you should avoid eating.But here's the thing ...........what about these athletes and sportsman who get cancer who are super fit..............The tv tells us that 1 in 2 of us will get cancer,fantastic odds,then why don't these experts stop opening their mouths and all try and find a cure for cancer.I wrote this on the back of a relative who has just got BC,who i must say is super super healthy ,eats all the right foods and lives in a gym,if your going to get cancer there is nothing you have done wrong,you are just the 1in 2.kind regards.

  • Who know there was so many brands of tamoxifen ,after numerous chats with doctor and chemist you get what they can supply,the longest same brand i have had is 3 months in 3 years,what with the night sweats, really looking forward to the summer heat.kind regards

  • I'm so with you there and the medics just don't understand the difference and the side effects. It's written on my prescription to have a certain brand only but even then I did all the leg work for them. Getting pharmacist on one side is a plus. Which is your preferred brand? Mine is Wockhardt. I was really struggling with Tillomed and just fearful of trying another brand.  X

  • It is really hard to say which is my go to brand because i am not on any long enough to pick one and the thought of being put on a different drug altogether could be a minefield, so i soldier on .hope you are keeping well.kind regards