Herceptin side effects- anyone else?

FormerMember
FormerMember
  • 2 replies
  • 272 subscribers
  • 370 views

Hi. I have nearly finished the 18 rounds of injections- only 3 more to go but the tingling in my hands and souls of my feet are getting far worse. Its really worrying me as I was taken off the Docetaxel chemo as my fingertips were so sore and painful. Does anyone else suffer in this way? My oncologit has said on last telephone appointment as long as not too bad I can keep going. But when is it decided it's bad enough? If the pain goes once the injections finish then I can put up with it, but what if damage is permanent? Also, and I do feel weird writing this, but I sometimes feel a tingling in my lips these days??

  • I am the same but feet only at night. I’m on amitryptilline for it but what I find brilliant is a gel cool pad at bottom of my bed, really cools feet down. I only have 4 kadcyla left and want to finish the course so I’m praying it doesn’t get worse x

  • FormerMember
    FormerMember in reply to Hmfm

    I hope it goes well forr you! It was only at night I used to be aware of it but now it is constant! All the best Suz