Started Chemo in January 3 rounds of FEC completed with only minimal side effects. Moved onto docetaxel last week and seem to have been hit with every side effect.
So sorry to hear this. I hope your BCN can give you some advice to manage the side effects and that you get through the worst of these soon. Wishing you all the best
Don't ignore the taxotere side effects. Tell someone....bcn, gp, or onco asap. I made the mistake of not wanting to make a fuss thinking the side effects were inevitable and would pass. They didn't and by the time I had to tell someone , damage was permanent. If nothing else the dose you have next time can be reduced so things don't get worse as the se's can be cumulative.
Same here - had 4 rounds of EC relatively unscathed and just started docetaxel. I've had aches, tingly fingertips, sore nail beds, headache, sore mouth and so tired. I had a hospital check for a high temperature too and a course of antibiotics as a result. Some of it has lessened now that I'm day 11. I think part of the reason is that by round 4 or 5 you become exhausted, but I think I'll call in on Monday to talk it through. Hope you get some relief
Hi Karen can I ask what side effects have left permanent damage? I only ask because I to have had side effects and just tend to ride them out instead of making a fuss. Have my last docetaxel next week x
Sorry to hear you got with loads side effects. I too am the same, completed first 3 rounds of FEC with hardly anything just fatigue and grogginess and then had my first round of docetaxel 2 weeks ago and wow it's brutal I too suffered all the side effects going - very bad aching bones and muscles, bowel problems, unbelievably sore mouth to the point I could hardly eat and that has left me with no taste hardly or everything tastes metallic, very sensitive skin on my face, sore nail beds. My next round of chemo is next Friday and I still not properly recovered so I too am going to speak with my oncologist about how bad I've been.
Done 3 rounds of e c Just had my first lot of docetaxel on the thursday .Friday I had to do the injection they give you and I was fine usually I get a slight pain in back from that due to the white blood cells affecting your bone marrow causing a bit of pain and then was in hospital Saturday with what I can only describe as worse than labour pain in my back legs stomach groin pelvis took 3 days to get the pain bearable and I am today still recovering at home and suffering awful side affects the list goes on . Lots of meds to take and up and down everyday see my consultant on the 22 to find out what is going to be the plan for next treatment . I am new to this chat forum diagnosed dec 2021 invasive ductal carcinoma er positive her2 negative aux lymph nodes and just been told I need a mastectomy so any people that can offer any advice who has been through similar situation would be greatful
Hello...... I am sorry you are all feeling the effects of the taxotere which are making you feel ill. Fortunately, I can't see anyone describing the problems which led to my permanent damage but don't ignore anything. Make a fuss until you're sure all is normal and just in case.....I will explain what happened to me. I did have aches like bad flu and some days because my mouth felt sensitive, I used the mouthwash hourly. I was also physically sick after any food and I needed to sleep a lot. Eventually around Day 11/12 those things improved but I had other problems which just got worse. The skin on my hands and feet tingled and started to burn. They were very red. I should have contacted someone then but thinking it would subside, did not. It did get much worse. Skin peeled off my feet in sheets rather than flakes. Sheets on the bed hurt both above and below. I had to lie on very fluffy, immitation sheep like fleeces that were really soft because anything else hurt. After a while I had difficulty walking because I couldn't put my feet on the floor. That's when I told someone. My chemo was stopped at that point as it was thought that I wouldn't be able to take even a reduced dose. Luckily six years on, it had done it's job and my cancer hasn't returned. Less fortunate neurology have tested and discovered certain nerves are permanently damaged and destroyed. I take a cocktail of pain management and B vitamins daily. My feet still burn but interestingly feel cold at the same time. My fingers don't always grip and I get lots of numbness. I needed a decompression operation on my lower spine as the neuro surgeon is confident that chemo accelerated deterioration there( oncology don't accept this but neurology see post chemo patients too many times for there to be no connection I was told.) The pain pre op was debilitating. I was lucky if I could stand for 5 minutes just before the op.
I want to stress these are very severe reactions to the Taxotere. I rarely describe them as I don't want to worry anybody. You are unlikely to get this reaction but some of it was my fault. If I had complained between the first and second dose, it could have been reduced and the main reaction which happened six days into dose 2, might have been avoided. It is why I always say .....tell someone about anything that doesn't feel right. If it's normal....ok... but if not....it can be dealt. You will know your own body. Don't wait if it feels wrong.
I am learning to live with the nerve damage. I can manage the pain and have got so used to burning , cold feet that I probably would notice normal feet more. But some of the pains have been unpleasant. I don't want you to suffer if you can avoid it.
I hesitate to post this information but I also don't want anyone to have the reaction that I had. I had three rounds of EC with slight side effects. Then one dose of docetaxel in November. Severe nausea and diaharrea. Did not want to be a woos so persevered for five days then phoned the help line, asked to go to A&E and was admitted. Had almost a month in hospital and was very ill. Have had every possible side effect and my chemo was stopped. I had already decided that I could not have any more, fortunately the oncologist said no so I did not have to refuse. Still have some of the side effects as described by Lacomtekp. Please get help if you have side effects. Do not delay. (To everyone we are all individual so do not be frightened by this post, you may be fine.) Good luck and may you feel better soon. Take care.
Thank you for your post I have a lot of questions for my oncologist as to why I have to resort to a chat forum and Google to get any kind of help or answers and really it should be coming from them as was not told or still aware of the affects of these drugs until it’s too late , seems a lot of people on here are all asking the same things when we shouldn’t have too
