Just diagnosed with DCIS

Hi Kimost. My post surgery bra is a bit more industrial. It does up at the front as some have said it’s difficult to reach around to do a bra up at the back post surgery. It also reduces the amount my boobs jiggle. I’ve found that any car journeys can be a bit painful since my biopsy, in fact anything that makes me jiggle. Hubby has been advised to drive me back from hospital slowly and avoiding little lanes with potholes.

Chickenlover that is so true. Any bump in the road would make me moan in pain for weeks after the surgery! All ok now though. It is my 39week pregmant daughter who groans  at bumps in the road now lol

Thanks.  All my sports bras are underwired so not suitable.  I shall go shopping this weekend. 

I had the radioactive seeding. It was really awful. It took an hour and 45 minutes as they couldn't find the 2 metal clips placed during the 2 biopsies.  I had to have the seeds planted under mammography and again they couldn't get the position right. My calcifications are at the very back near the chest wall. It took 2 nurses pulling my breast and clamping my ribs to be able to target the area. I'm in bed feeling sorry for myself. I'm grateful for their persistence and one particular nurse held my hand. The radiographer himself was lacking empathy. He seemed totally oblivious to my pain... saying things like slight sting!!! Or "discomfo"!!! I wanted to stamp on his balls and call it discomfort! Sorry to rant but it was truly horrid. 

So sorry, it sounds like you have had a horrible time having the mag seed inserted. It is in and awaiting surgery now though so try to relax and tell yourself you have got through that stage and it is on to the next one. You can pick them off and be proud of yourself each time you get through each one on the way to getting you better. 

Definitely don't apologise for the rant. It will help you to get it off your chest (apologies no pun inyended) and out there and we are here to listen.

Hi Kimost , that sounds awful! I’m so sorry I would have wanted to stamp on his balls too. Sometimes it just feels like one assault after another. I had the covid swab and another blood test yesterday, tiny little things but it’s getting to the point where I just want to be left alone.

op tomorrow, thank goodness we just sleep through that

Will be thinking of you tomorrow. Op will soon be over!

I'm not feeling good about this at all. Yesterday's "seeding " process was traumatic and barbaric done by a man without empathy. They couldn't find the clips put in at Luton so it had to be under mammography again. An hour and 45 mins later I was left traumatised in great pain and bleeding . I'm seriously wishing I hadn't had the first mammogram as this whole thing might NEVER have developed into anything. I have read medical papers questioning this very thing... overkill treatment of dcis! 

Before I had the first routine mammogram, I had googled thermography and mri as alternatives as I hated the idea of radiation. Now I have had 20 mammograms ( because they couldn't position me to get the images they needed) and face radiotherapy.

I'm angry, scared and truly wish this had not been found. It is damaging my body with the stress, lack of sleep, stressful appointments and I haven't even had it done yet!!!! Also  I expected several "seeds" to be put in . They only did the 2 where the metal clips had been placed. There were 5 areas though... and clips put in at the extremes... I'm really concerned that an area of dcis will be missed and I will have to go back in. I KNOW I will have to put all my trust in the surgeon but I can't help questioning this whole process. 

I feel awful. Wish I was handling this better. 

I've accepted nothing.

I still waiting for them to tell me they got the wrong results.

I have dics & idic invasive dics, 20;mm lump.

Had surgery to remove it , just a lumpsectomy , depends on the results as a whole what they offer.

I was offered therapy but I refused.

Now I'm waiting to see therapist.

If you can get therapy , maybe might help  X

I went through this last year, and I totally share some of the other people hear who talk about feeling well and then hospital treatment making you feel rubbish. One of the things that really helped me was the Headspace app - I did 10 minutes a day from diagnosis onward there is a particularly good set of meditations about cancer specifically and I did the course twice. May not be your thing, wasn't really mine before, but I found it gave me back some faith in my own body in a weird way. Best of luck with it all. 

I went through this 11 months ago and yes the positioning of the seed was horrendous  but the staff were fabulous. Surgery and radio therapy were a piece of cake compared to it. I have been discharged from cancer specialist with annual follow ups. But now I am in limbo as I have tested positive for bracca2 gene and have to have double mastectomy and removal of ovaries.

 I accepted having the BC and I think being positive got me through it. However my mind is in turmoil at having the other surgeries, Fear of the unknown I think as I haven’t managed to speak to anyone about either..