Stage 2 invasive DCIS E+ and HER2+

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  1. Quick back story, Was diagnosed in sept 21  (after being misdiagnosed since April 21) mastectomy and SNB (1/3 positive) Nov 21 26mm invasive with a total of 92mm (non ivasive and invasive) was due to start chemo in the Jan 22 but my youngest DD got covid and then so did I, so chemo was deferred until Feb 22. Started chemotherapy last week, having 5FEC-T and then on the 4th cycle I will start Herceptin.
  2. Just really wanted some positive vibes tbh as although yes I know my cancer has a positive outcome at the end of all the treatments (consultant said 98% survival rate for the next 10 years), it is a very scary place to be especially when I have children at home and my partner lives elsewhere, it's harder that I am not allowed to bring anybody with me while I have the chemotherapy due to covid restrictions etc. Anyway, I hope everyone is doing ok. Thank you for reading x
  • Me too Dee, I love a cuppa first thing but it just doesn't taste right does it  ? In fact nothing does. Got a bit upset about it yesterday. Food is just so awful.. 

    Thank goodness for ice cream & lollies. I've discovered that the choc & sprinkles on a fab taste marvellous . 

    I started to loose my hair a few weeks after starting chemo. I'd had it cut short but needed to shave it a couple of times. It was heartbreaking then. But I now quite like my selection of headwear and it's already trying to grow back as white fluff. Has anyone else found this. I can feel the wind blow it. Wierd. 

    Glad you managed a break away.. 

    Hugs 

  • That's brilliant news Txl47.    It seems such a long way off and then suddenly you're there. 

    Really really pleased for you.

    And a month to recover from Chemo. Fab ! It'll feel strange but good won't it. 

    My last Chemo is 27th May and appointment with breast consultant and oncologist is on Wednesday so I should know when my op is.. 

    We're all getting there and doing so well.. 

    Lots of Hugs 

  • I feel a lot better today for sure, yesterday I just felt quite lethargic and rubbish, going to try and potter about in the garden today, get my plants potted up etc etc, put some colour in the garden, always makes you feel better xx my taste is still none existent lol have to try eat when i can and try find foods that migh taste of something.

    I hope everybody is doing well. xx

  • Morning Jebe.

    My hair is a bit if fluff too and in week 3 actually grows a wee bit. It was tough losing the hair but knowing it will grow back and like you got all nice coloured beanies helps.

    I am struggling with this all just now. Couldn't sleep at all with my mouth/throat so ended up going back to bed this morning just to rest.

    Hate not being able to eat or swallow.

    Going to get up and try and get a walk in and power through this.

    Sending love and hugs xxxHeart

  • Glad you are feeling better Tizzy and a good potter in the garden be good.

    Have a great day xxxHeart

  • Oh Seaside it's obviously a bad day. We all take eating for granted and just don't realise how awful it is not to be able to eat until you can't. I think this is is probably one of the worst side effects isn't it ? My chemo nurse said it's because the toxins build up after each treatment. 

    I'm having a tearful day because I can't eat and at the point now that I'm hungry but see it pointless trying to eat anything. Taste & texture is just gross.. 

    It's a blip and I know we'll get through it.. 

    Love & hugs 

  • Nothing like a bit of gardening Tizzy.  Glad you're doing ok today

    Hugs 

  • FormerMember
    FormerMember in reply to Jebe

    Thanks! Yes we will all get there, it’s a bit of a slog but it will end! 

    I am not struggling tooo much to eat this week, I find the 3rd week before my next treatment is when I can start to slightly taste things again… I do find that when I reach the point of tears - usually around a week after the treatment - then that is the peak of the awful mouth taste and things get better after that… I had a really strange one this time around where I couldn’t drink anything - even water tasted horrible! But about 7-10 days after the treatment it did Improve and I’m drinking watered down apple juice and ribena now… 

    Its my “week 3 Chinese” tonight which I’m very much looking forward to, the chicken curry which would usually be too spicy for me in olden times is just right now! 

    We’re getting there! X

  • Enjoy your chinese. I am hoping by week 3 will feel better and can eat again.

    Have a good night xxxHeartHeart

  • Hi Jebe.

    Its just such a horrible feeling not being able to taste or eat. I just had weetabix with banana mashed in as it was easier to go down my throat.

    That makes sense with what your chemo nurse said about toxins just glad it's not for ever.

    Sorry you are tearful today too, here's a virtual hugHeart

    We are thinking of going a wee run and can sit in the car just to get a change of scenery 

    Hope your day gets better

     Take care xxx HeartRainbow