Her2 positive primary, spine iliac and hip bone secondary - anyone else out there?

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hi there,

Am at my six month anniversary of being diagnosed, have had radiotherapy and now on:

Leterazole, zolidex, denosimab, pregabolin, ibrance chemo, morphine ibuprofen and paracetamol for pain.

How is every getting on with coping mechanisms and side effects?

Stable at present but very fearful for the future!

  • Hi there, glad to hear you are stable right now, that's a positive thing to hang on to, though that sounds like a lot of meds to remember.   I am on a different journey to you, still undergoing treatment for HER and ER positive breast cancer and on Letrozole for 10 years with minimal side effects to be fair.  

    How are you doing? I hope you are managing ok, especially with the pain.  

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  • Hi Irish girl thanks for your reply-I slid down a worm hole back there so sorry for not replying.

    how are you doing and how is the treatment?

    I’m coping and managed to go back to work for a bit the pain is creeping  on in but that’s because I stopped the pain killers as I thought I was getting better which ofcourse I won’t be.

    Im three stable scans in and trying to relax a bit.

    Sendding love Heart️ 

  • Hi, luckily I am doing fine, back at work and travelling again. Glad you’re relaxing a bit, 3 stable Scans sounds good, take care

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