Hi everyone, I'm new to the Macmillan Cancer Support group and the Breast Cancer Forum (joined this morning). I've joined because I really need to share my feelings (and hopefully get support and be able to offer support) of 'not being able to get my head around it' and of feeling fraudulent.
I will start at the beginning (which is usually the best place to start ). I attended a routine mammogram on 24.07.2021, 10 days later I received a letter asking me to attend the Breast Cancer Clinic at Worcester on 14.08.2021 for further tests, to include a biopsy. I was told I would get my results by 21.08.2021, however, this was delayed due to staffing levels in pathology/histology. I finally got my result on 27.08.2021 - BREAST CANCER. Did my world fall apart - no (I didn't feel anything) I just sat there thinking "I thought you had to have someone with you if you were being given bad news"? My pragmatic side quickly kicked in and I started asking the obvious questions, how big was the lump - 5mm (wow that's small I thought - not that I had any idea about these things and what the size meant). The Consultant said that it could not be felt and I would have not detected it during self examination. Next question, where do we go from here? The consultant told me that surgery (lumpectomy) was scheduled for 10.09.2021 and that apart from the pre-op I would have a 'magseed' implanted in my left breast (cancer) to aid the consultant during surgery and a sentinel node biopsy. There would be radiotherapy following this and that the Oncology department would contact me to discuss length and number of treatments involved.
So, the surgery took place on 10.09.2021 and I had my follow-up appointment with the consultant on 24.09.2021 - "no more surgery for you, you're CANCER FREE," I burst into tears (the first and only time I have cried) and laughed at the same time. The lumpectomy had been a huge success, the lump and margin that had been removed was 10mm in total, 2 nodes had been removed and tested, they were clear, it had not spread (relief). I was given lots of information from the Breast Care Nurses regarding support for me going forward.
As I walked out of the hospital the thought occurred to me - how can you be diagnosed with breast cancer on 27.08.2021 and then be cancer free on 24.09.2021? I'd never heard of anyone (and still haven't) having cancer for such a short period of time. Friends and family kept telling me that I had been lucky, that it had been caught early.......... I didn't feel lucky I felt and feel like a fraud. I'm struggling to 'get my head around' the fact that I've had cancer (I even hate saying the word as I don't feel I have the right to use it). During my appointments I sat in the waiting room surrounded by women and men older/younger than me (I'm 55 by the way) looking ravaged by the cancer and treatment that they were going through. I felt and looked positively healthy compared to them and wondered if they were looking at me as if to say what is she doing here? I know they were concentrating on themselves but still........
So, I started my radiotherapy on 21.10.2021 for 5 days (22.10.2021 - my birthday, what a birthday present!) I had my last session on 27.10.2021 and was asked if I wanted to 'ring the bell'? I did, and the staff took pictures and a video of me doing this. I then sent a photo to all my friends and family captioned 'Cancer Survivor' - boy did I feel like a fraud!!
So therein lies the problem - how can I be a cancer survivor when I had it for such a short space of time? I've seen members of my family and friends who have passed from cancer looking and feeling so poorly with it. I haven't lost my hair (it's definitely thinning), nor weight (I could really do with losing some) nor my appetite (it's still as voracious as ever)........
I'm not looking for validation, maybe sharing my story/feelings and reading others will help me to get this into perspective before it completely consumes me.
Sorry for such a long first post.
Hi
Your story is the same as mine… 4mm tumour picked up on routine screening, surgery and RT all completed without a hitch and now on Letrazole.
I feel a bit like you but just because we have been extremely fortunate to be cancer free so quickly it is still a shock to have had it and we will still have the same fears as everyone else.
We are the success stories of the screening programme and we should celebrate that and not feel guilty.
I feel so fortunate that we live in a country where we get good healthcare and I’m so grateful to the NHS
Take care
Hi Homesick, I can totally relate to your post. I found lump end of July had mammogram, biopsies and MRI followed by mastectomy,(due to the size of the lump) on 13th September. Follow up appointment was on 8th October where I was told no further treatment just tamoxifen for 5 years. Like you it all happened so quick that I didn't feel it had actually happened a bit like a bad dream and I also told my BCN I felt like a fraud, which she quickly dismissed. I have struggled emotionally the last few weeks which the BCN said was normal as everything happened so quick so am now having the counselling arranged through Macmillan which is helping greatly. It's nice to read your journey (not nice that you have had cancer but you know what I mean?) as I can totally relate to how you are feeling if that makes sense.
Hi Exraygirl
Thanks for your reply. I too cannot fault the NHS during my treatment whilst on the '2 week pathway'. As you say all has gone without a hitch and I also feel fortunate that I'm free of cancer,. I hadn't actually looked at it as being a success story of the screening programme, which of course it is. I'm glad I posted as your reply has helped me look at it from a different angle. By the way I'm on Anastrozole.
Stay safe
Hi Benarino
You have summed it up - 'like a bad dream' it really doesn't feel real. I'm lucky that I didn't have to have a mastectomy and can honestly say I don't know how I would have coped or whether I would have coped any differently if I had?
I am beginning to wonder whether I should contact the BCN to arrange counselling as I am sick of it going around constantly in my head. I haven't returned to work yet as I can't bear the thought of going in and looking like I've just been off on a jolly (don't actually know how you're supposed to look after BC)?
Best of luck for the future
Definitely ask about the counselling as that was my problem, I was constantly thinking about it, running though the appointments, conversations and it's because you didn't have time to take it all in properly, your brains only digesting it now. I haven't yet returned to work but you did make me laugh with I don't know how you are supposed to look after breast cancer as I don't look any different to people when Im dressed and am wearing my prosthesis, which i suppose is a good thing.
Haha - sometimes I say the dumbest things without thinking.
Just communicating with you and Exraygirl this morning has lifted my spirits - you think that you're the only one that has had such a short journey with cancer, but, somehow, it's comforting (if that's an ok word to use?) to hear other people have experienced the same. I'm definitely going to ring Macmillan to enquire about counselling as I'm finding it very difficult to be kind to myself (as I also keep getting told).
Thank you so much x
Hi Homesick,I too fall into the short lived diagnosis breast cancer,I wanted to ring the bell but couldn,t bring myself to do so,simply because I seemed to sail through it all,diagnosed July,had opp Sept,just finished radio,although you can,t help but feel for others,I simply feel soooo lucky.
Try to go easy on yourself x
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