1. I’m recovering well after bilateral mastectomy and left side axilla node clearance. 13 nodes removed, 11 diseased, on one side No reconstruction. Nearly seven weeks post surgery, and discharged by breast surgeon, next check up in six months. I’m still a bit sore in one arm and still a bit swollen around the scars or or maybe more lumpy than flat chested. I wonder will the shape continue to even out?. Or will my chest just stay lumpy?
2. First oncology telephone appointment in a few days wondering what to expect? and how long before they actually start chemo? The waiting is the worst. And I feeling terrified about chemo and very anxious.
3. Starting to worry now about work, I’ve been on sick leave for two months, and have another month before my fit note runs out. Although I feel stronger now, and thinking about returning to work. Next week, I’ve got four appointments gynae, counselling , oncology, protheses fitting, so although I’m thinking I should be working, I just can’t fit it all in..
It looks like Chemo will begin soon and that’s going to be a long drawn out process, I’m going to end up totally skint, I live in a small rented flat, earn little and get nothing more than SSP, can’t claim benefits as have just over the savings limit.. which isn’t going to last me long, as it doesn’t cover the cost of living.
My job supporting people with physical disabilities is extremely physical. Statutory sick pay better than nothing coming in. Realistically I don’t think I’m going to be able to go back. But financially I would be stupid not to just get another three months off work, and drag it out, as long as I can, it goes against the grain a bit..
fed up
Good morning....
Sorry no one was about last night to reassure that all your worries and questions have been shared by so many posters on here.
Firstly....stop feeling guilty. You are dealing with a serious illness. Now is not the time to decide about what you will do in the future. Get better first and to do that you need all the sick leave and SSP you are entitled too. During chemo I don't think you will be allowed to do your particular work anyway even if you do feel up to it which you may not.
The time of waiting is often hard. As well as anticipating the unknown, you have time to think about all the complications. On the financial side I can't help as I was already retired when my cancer was diagnosed but I know Macmillan has an advice line for that so if you haven't contacted them , please do. I know they have helped others with the information they provide.
You have a busy week ahead but at least by the end you may have some answers to your uncertainty. I am surprised your surgeon has discharged you. I continued to see mine for much longer but I know every area has different systems. The oncologist should be able to check you to allay your concerns about lumpiness. I know mine always examined me anyway. Don't forget to ask .......
I hope all goes well for you over the next few months. I know I haven't been very helpful but I just wanted you to know you are not on your own. Once the next treatments start you will feel more in control again and less in limbo and fed up.
My advice for today.....if it's sunny try to get out and do something you enjoy to distract yourself from the wait.
Take care. Love Karen
Hi Greencyclist,
I could have actually written this myself, your situation is so like my own . I have lobular cancer (left breast) and have recently had double mastectomy (no reconstruction) although I haven’t had results from surgery yet so don’t know the finer details or treatment plan yet.
I too live in a rented flat and work as a carer in a nursing home , which is very heavy work . (And not a job you can carry on doing through breast cancer treatment)I also have just over the savings limit so am not entitled to any benefits. I find it very unfair that at such a difficult time in our lives that we are expected to live off our hard earned savings but the way I’m trying to look at it is , savings are for a rainy day and at this moment, in my life there is a torrential rain storm going on in the form of breast cancer so I am trying to focus on getting through treatment and hopefully getting well and if that means watching my savings dwindle I don’t really have much choice so I am trying not to get too down about it .
However they expect anyone to survive on £95 a week SSP is beyond me and money is something we shouldn’t have to worry about on top of a cancer diagnosis.
just want you to know you are not alone and I’m sure lots of others are in this situation too. We just need to try get through this the best way we can x
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