I am 34 and was diagnosed with invasive lobular breast cancer around 2 weeks ago.
It's grade 2 and I'm awaiting the results of further biopsy tests of the lymph nodes and the MRI results to see if its progressed further and the treatment I require.
I honestly don't know how to feel, I was in shock last week, my partner helped out a lot and was a real emotional support, one week later and things are back to normal, I don't feel I can talk to him and he's just expecting me to carry on like nothing is happening. We are trying to keep things as normal as possible for our 5 Yr and 8 Yr old boys but I don't think he understands how hard it can be sometimes.
Because we are waiting on tests etc I'm wondering if maybe he feels it's not as serious as he first thought. Best case scenario is an operation and the hormone tablets, I think he'll think I'll be up and running again a couple of days later and maybe I will. Can anyone with this type of cancer share their story/treatment/recovery time.
We have limited information regarding the stage of cancer it is so it's hard for us to understand what's going to happen but I feel so alone sometimes, we only have to wait until Monday but the closer it gets the harder it is.
As much as everyone says you have to keep positive, you also have to be realistic too, I feel like we're just ignoring it and hoping it will go away.
I feel so lost, this week I just want to hide indoors away from everyone, I've also stopped working at the moment due to risk of covid so I've really lost some social aspects and a bit of normal life and although I have a couple of close friends to talk to I still feel like I want to hide away. Is this normal?
Oh I so understand how you feel and why you are worried that your partner is not grasping what's happening. He will be in shock , as I'm sure you are aware men process information differently to us.
Should all your tests come back with a favourable result it will hopefully be a quick surgery as a day case and some tables . COVID is taking such a toll on cancer investigations and cancer patients. The waiting is the hard part now and leading up to surgery after that it's not as bad . Lumpectomy patients are often back up and running in no time. Is that what you will choose if you need surgery? It horrible when you are going through all this worry and it seems like everyone else is just getting on with their life without a care.
But remember that Grade 2 cancer is so treatable today results are very good .The doctos will have a treatment plan to put to you on Monday so it's not too long now try and relax if you can.
Jayne
No useful advice but we have a similar diagnosis on one side - I have another sort of cancer in the right. I’ve just had lumpectomy and lymph nodes removed so sore and a bit fed up, but it seems to be going well. Find out on Monday if they got it all, and then I’ll need radiotherapy. All the best to you
Hi I was originally diagnosed with a 9mm grade 1 ductal cancer, that turned out to be a 21mm grade 2 lobular cancer after a lumpectomy in July, I recovered well from that surgery but had 2 lymph nodes positive so had all lymph nodes under my arm removed last week. I took about 2 weeks to recover the first time, I was in a little bit of pain but it was nothing that 2 paracetamol didn’t help and I just took it easy really, no lifting anything really to start with and being really careful.
Its only natural to feel lost, you’ve just had a huge shock, I just wanted to curl up in a ball and cover myself with my duvet.
Sending hugs
Diane xx
Hello, I think you're right it's the waiting that is probably the worst.
Too much time in between to get back to some normality and then a crash down into the reality of what's happening.
I have no idea what to expect to be honest. I have no idea what to choose when my options are presented to me, options were discussed but not in depth, lots of scenarios were mentioned about treatment.
Thank you for your help.
Hello Themummyoftheboys
In our hospital it's up to the women to choose the type of surgery they want in most situations. Often if a lumpectomy is chosen then radiotherapy is also given , but not always. With some cancers then it's Chemo . I chose a bilateral mastectomy because I had cancer in both Breasts. My daughter who is 38 would have chosen lumpectomy if it had been her . I can understand that. I would if I was you to just prepare my mind for some surgery at this point and hopefully no more. Lumpectomy are day cases and take about 90 mins . You can make a very good recovery from this in respect of your physical health but emotional health will take a little longer.
Take care Jayne
Thank you for that information, that's a great help.
I will have to have an operation regardless so I'm going with a very open mind and will explore all options and I know every case is different. I think because there was still so many questions that were unanswered when I saw my consultant, it's difficult to prepare or process.
You are amazing and thank you so much for your help.
Your welcome , cancer recovery is very good now and you are already in the system! So treatment plan on Monday join the operating list, our lists are about 3-4 weeks . All done by middle of November and Christmas just around the corner X
Take care and don't stress too much easy for me to say hard to do !
Jayne X
Just to let you know some cancers are treated before surgery , sorry should have mentioned that as well x
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