BC spread to bones

FormerMember
FormerMember
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I was diagnosed with BC in late 2012, went through treatment which was pretty harsh but I got through it. Everything went 'back to normal'  and I continued with living. Pushed it to the back of my mind for a number of years then I found another lump under my arm where they'd already removed my lymph nodes , this was 2 years ago, had numerous tests only to discover that a infected lymph node was missed and layed dormant for years, only to raise its ugly head again. Unfortunately it had spread to my bones, specifically my spine and leg. I'm 55 and feel like I'm 80. I've been struggling recently with pain and find it so very hard not to let it affect my family as I don't want to worry them. Today I'm not in a good place, I struggle to do anything. I still work, which I love but am finding it a struggle some days to fulfill my duties, I can't give work up as will lose my house. I'm just basically lost ! I have a great, loving family but I don't always tell them when I'm not doing good because it just adds to their worry. Not even sure why I'm writing this but suppose I needed to vent a little and to like minded people who understand. 

  • FormerMember
    FormerMember

    Hi Gina B 

    Will you be having treatment? I'm so sorry this is revisiting you again .  I can understand you don't want to worry your family , but would they want to know? I'm sorry you are down and that you feel lost. Sometimes posting on here helps with all the stress of this disease . 

    Take care 

    Jayne X 

  • FormerMember
    FormerMember in reply to FormerMember

    So lovely to receive a reply. Yes, I'm on oral chemo daily and monthly injections. I do tell my family some of how I'm feeling as its hard to hide it but I feel so guilty that I can't be, who I used to be. I feel like a burden to everyone and although my work are very understanding, they can't carry me forever.

  • FormerMember
    FormerMember in reply to FormerMember

    I understand  I'm down as I'm going to start chemo next week I think. I had a heart scan today broke down in there with all the stress. But not going to tell my family they got enough on their plate already. Do you think counciling might help? I know I bloody well need some lol x  

    Jayne x

  • I really feel for you and understand your wish not to burden your loved ones but they will want to be there for you. I have a 12 year old and if I am not honest with her when she can see I’m struggling she fills in her own blanks and it worries her more, they will be watching carefully and will know you’re struggling, let them help you if you can. But if you can’t, vent here and we’ll listen. Could you arrange to work from home a couple of days to help the fatigue? It is dreadfully hard some days juggling our responsibilities and also our brains!! I’m amazed at how up and down I can feel sometimes. Lots of love to you and hope your day improves, if not maybe a large gin is in order! Xx

  • Hi Gina sorry to hear what has happened but I hope your treatments are working to keep you well and stable.

    If some days are better than others can you work flexibly so you do more some days than others? 

    Sounds like you are far from a burden to your family! But understand how you feel about that.  There’s always someone here to listen.  I don’t know how I’d have coped if I hadn’t found this forum! X

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Jayne, thanks for your reply. Are you having intravenous chemo ? I've had is a couple of times and its fairly manageable as long as you rest. I felt like I slept for months on end but my body needed it, I had a few good days here and there and made sure I did something fun like catching up with family and friends. Really hope you're ok.

    Yes, I may well get counselling as when I am feeling so ill, I unfortunately have negative thoughts and it scares me because I want to be around to hopefully see any grandchildren one day, I'm just having a particularly bad day. Thanks so very much for your advice and kind words, it really does help x

  • FormerMember
    FormerMember in reply to FormerMember

    Gina B I can relate to everything you say yes IV chemo terrified about it all . I can sleep in I'm  off work . My grandchildren keep me going  so yes they will help hope that this all behind you once and for all when those grandchildren arrive they are wonderful X 

    Jayne 

  • FormerMember
    FormerMember in reply to FormerMember

    Your reply made me smile, can't wait to have grandchildren so I'm going to try and stay positive and keep going. Don't worry too much about IV chemo, it really does work, I was just unlucky. I literLaughingly wrote off a year of my life to recover from the chemo but it was worth it. You've just got to rest, rest and rest and watch lots of netflix Laughing oh and eat whatever you want as life is too short not to. Thanks so very much again, it really has helped. Look after yourself xxx