In so much pain a week after first chemo

HalloweenChristmas  my story on profile .

Hi sorry you're suffering you don't say which chemo you on plus we all react differently so it may be hard for you to get answer on here . My advice would be ring your chemo unit and chat to them they can tell you if what your feeling is a SIde Effect or not . Either way they should be able to give you advice and or meds to help 

Hi HalloweenChristmas

Really great to meet you, only sorry that we find ourselves here! 
I too am HER2+ and have invasive ductal cancer grade 3. I have had 4 cycles of EC every 2 weeks and I am now on weekly Docetaxal with 3 weekly herceptin and p something, I can never remember the name if it. 
I found EC challenging but doable and I was very lucky as I slept a lot and was able to work the second week. I took my anti sickness meds from the day after chemo and this really helped, ant acids twice a day and normal paracetamol for a sore head if I had one. For me the main issue was fatigue. 

Docetaxal I have had joint/muscle pain and again fatigue snd unfortunately a bad stomach and sensitive mouth  but again I am coping and able to work 3 of 5 days, though limited hours. 

Talk to your oncologist about the side effects, they can help and the best advice I got was to listen to my body (so I slept a lot!!) and chemo is my friend. Today I couldn’t go to work as I was just too tired, so I slept and worked from home for a few hours. 

Everyone is different so don’t worry too much about what others can do and you can’t, it’s your cancer and you will find your way with the help of your care team and those close to you. 

Take it easy and we are all here for you xx 

Are you taking filgastrim injections into your stomach? I have these side effects because of those starting a 5/7 days in, I also get horrible headaches. I also get the same effects as rumple describes from the docetaxel so it could be that but if you are on EC I’d suggest it’s the filgastrim, pain killers and I’ve just been recommended to try loratidine  which I’m trying this cycle. I have also reduced my injections from 7 to 5 x

Hi Margaret, thank you for your reply, I'm on EC and Doxetaxel for 3 cycles then herceptin, pertuzumab alongside Doxetaxel for 15 cycles, I have just finished the 7 day injections. I'm at the chemo unit later today so I'll ask the question. I honestly thought I was gonna be OK, but this pain is the worst x

Thank you Rumple01, I have pretty much the same diagnosis but grade 2,

so I'm going to be on the Doxetaxel for the whole 6 sessions. I'm kind of relieved that the joint pain is a symptom, it puts my mind at rest, I will have a conversation with my nurse about painkillers just so I can get some sleep. X

Hi Anna12345 , thank you for replying to me, I am taking those injections, I just finished my last one yesterday, I've also been getting really bad headaches. You'll have to let me know how the loratidine works. I'll have to ask about the quantity I have or what I can take. Its exhausting x

I’ll let you know, I start injecting tonight so let’s see if it helps. I’ve just been taking the standard one tablet dose for now x

Fingers crossed for you, my oncology team have said it is the injectionin causing this severe pain and to mention it next time I have chemo so they can reduce. It was so bad yesterday I could not sit, stand or anything.....awful 

If those tablets work that will be a god send. You take care  x