DCIS multi focus - need MRI

Hi Polly71, I was diagnosed on 23rd June with grade 1 ductal carcinoma 9mm, lumpectomy 23 July, results 2 weeks ago I had clear margins but it turned out that it wasn’t ductal it was 21mm lobular carcinoma it also had LCIS and low grade DCIS and 2 lymph nodes positive, they said I then needed auxiliary clearance and they would send me for a MRI which wasn’t urgent but I told them I wanted it before the next surgery and now I have MRI next Thursday. 
I was positive from the beginning and as they were completely sure what it was and biopsy showed it was HER2 negative I wasn’t really that worried about my results just wanted them over and done with. I was floored when I had them and to be told it’s grade 2 and HER2 positive, the only bit that the biopsy got right was that it was oestrogen positive.

I have calmed down a bit now mainly because there’s nothing I can do to change it, I just want the MRI done and if there’s any more get that sorted too, I still can’t wrap my head around it, it’s like it’s happening to someone else to be honest.

I hope you get your MRI sorted soon

Diane xx

Thanks for your reply Diane, I asked questions about the hormone things, and the BC nurse said they don't look for that in DCIS at stage 0, because not classed as invasive.  I am confused with DCIS, LCIS and the stage 0, but then they talk about multi focus and MRI, it then feels that this is more serious which conflicts with my positive thinking- I ask questions and read up on things, but don't feel I know enough about my diagnosis to be honest. I think I will ring my BC on Monday. xx

Hope you are sorted soon too x

I too had dcis and had lumpectomy at Xmas time followed by radiotherapy then on 6 month check up in august  I found a lump in the same place as previous lump… didn’t show in mammogram but after ultrasound and biopsy’s showed more dcis same place and another area. I was confused as I had just finished radiotherapy. After multi team meeting it was decided I should have a mastectomy which I thought was bit drastic as it was dcis but I was told it was obviously fast growing and could become invasive. I had mastectomy 2 weeks ago and thankfully my lymph nodes are clear and no invasive cancer found.  I hope this helps. I know everyone is different. It took me a bit to come to terms that I needed a mastectomy but if it saves my life I feel thankful. Good luck and will be thinking of you. Xx

Hi Polly71, DCIS is pre invasive meaning that it’s still contained in the duct, LCIS is still contained in the Lobe, that’s how they say its stage 0 because it hasn’t reached the stage to become invasive yet. Multi focus means there’s more that one, they call the tumour focal/focus, they check with an MRI to have a better look at the breast as if there’s more than one in the lumpectomy they need to make sure it’s nowhere else, with mine the main tumour was 21mm but there were two others one was 3mm and the other 1.5mm, my mammogram only picked up one and it was measured at 9mm on the ultrasound but turned out 21mm luckily my surgeon took a 4cm lump so got it all. The MRI can give them a more detailed look.

I read up on things too as I really need to understand what they are telling me.

Hope your BC is some help on Monday xx

Thanks Jane, really helpful x

Thanks so much, this is really helpful and explained better than I understood, I now feel clearer on the terminology and hopefully will help with my mind running away with me xx

Hi

I've had a lumpectomy for a DCIS grade 3. Initially 2cm but results showed it was 5cm apparently that's not uncommon .

Needed a second scrape to get a clear margin and although the results were better one small area had no clear margin it hadn't Invased so I held on to that.

I had an aggressive scrape last my last chance a week ago and get results tomorrow, we half discussed a mastectomy but surgeon and BCN said to give it one last try

Like you am I meant to feel happy it's early, contained, and stage 0 cancer, or scared frightened about what will happen.

Take care x