Has anyone paid for an Oncotype test under the NHS and how much was it? ( I am not eligible for a free one)
As I understand it the Oncotype test is carried out for early invasive cancer only, it determines if chemotherapy would be beneficial to patients. My status after surgery was Grade 2 Stage I, no lymph node involvement, clear margins, Er8 Pr8 HER-, my Oncotype score was 12 therefore no chemotherapy benefit, so I’ve had radiotherapy followed by hormone therapy.
Because the cut-off score is slightly different for women roughly at the age of menopause. It's only for ER+ cancers, and usually grade 1 or 2. Grade 3 would normally mean chemo as it's more aggressive as would TN and HER2+.
Hi, this was automatically done after my surgery ( mastectomy, lymph nodes and margins all clear ),my score came back high so now having to decide whether to have chemo as well as hormone meds ( causing me more anxiety)…..apparently it’s only done for certain types of bc as stated by Eline xx
Hi - I was wondering how big your lump was if you don’t mind. My diagnosis is the same as yours but they have said no to the Oncotype test as I am low risk but everything I’ve read says this test is for early breast cancer no movement to the lymph node. I have challenged but still a ‘no’.
Hi Moco
No, I don’t mind at all. Invasive tumour size was 20mm, whole tumour size was 28mm. Who has refused you the test, surgeon or oncologist? I ask because my surgeon told me she was waiting for the result before I was passed on to oncology. However at my first oncology appointment I found out that my test hadn’t even been sent off, oncologist was away and blamed other staff, she then tried to talk me out of having the test done and said “The cancer’s been removed, you don’t have cancer any more”. She then went on to ask me if I would accept chemotherapy if my Oncotype score was high. I was so upset at her attitude that I called the BCN as soon as I left the appointment and the breast clinic sorted it out, the test was sent off the next day.
Has your consultant explained why you are considered low risk?
Best wishes x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007