Tired, aching feet!

Hello,

The symptoms you describe are very similar to ones I get although my feet also go red and skin and can feel like ice at the same time as burning......how does that happen?

Anyway, my doctor referred me to a neurologist. He tested the nerves in my hands and feet and did an extensive blood test for vitamin deficiencies.  The tests showed permanently damaged nerves.....he explained chemo was most likely responsible and like you, back in early 2016, doses were harsh and I did react badly at the time. The blood tests showed deficiencies in B12, B1, B6 and zinc. All these connected to nerve control. 

So now I have regular neurology checks. I take B1 and B6 daily and B12 from a liquid vial every 10 days. I also take gabapentin to help with both the discomfort and the tingling. In France the tingling is called Formis.....ants!.....but it's a good description isn't it?

I'm sorry I can't be more helpful suggesting solutions because there don't seem to be many.I do have a bed cage to use on nights the sheets feel heavy and hurt my feet. I haven't found anything that stops the burning. I have noticed that they do flare up and are sometimes worse than others. Unfortunately this is a permanent problem. It can't be reversed and in my case, the damage is continuing to creep from my feet to lower legs so it's probably a good idea to have your problem properly monitored. Hopefully it won't be quite the same but whilst we were lucky the drugs dealt with the cancer, I am glad they have acknowledged the damage that particularly taxotere did and now treat patients with smaller weekly doses the body can cope with or reduce the quantity if given three weekly.

I would certainly chat to my GP if I were you. You can quote my experience if it helps.

Take care. Love Karen

Thank you! That’s really helpful. I mentioned it to my oncologist a couple of times but he just brushes it off….I’ll speak to my gosh.

Gp!

Hi Galligirl

I am just over a year from end of treatment, same as you had chemo/rads now letrozole. I get very hot feet every night, burning and weird spongy toe feelings  told it was affects of treatment neuropathy I run them under cold tap ! 

Xx

Thank you! I’ll try that!

Hi Galligirl same here also a feeling of wanting to click ankles to get circulation back plus four toes slightly sponge numb .

Hot feet in bed I use cool mat you can buy them for pillows but sand product at half the price sold for pets