Hi everyone,
apologies, this might be a long post!
My mum was diagnosed last July with stage 3, grade 3, triple negative. The tumour was 6cm, and 5 lymph nodes had cancer. Only a partial response to chemo, followed by mastectomy and radiotherapy. All treatment finished in April of this year.
My mum struggled with finishing treatment as she felt she was cut adrift and didn’t have the security and reassurance of being under the hospital anymore.
She has been putting on a brave face but I knew she was struggling and trying to hide it.
A few weeks ago, it all became a bit too much and I found her sat outside at 1am having a massive panic attack and was sobbing and shouting “I don’t want to die, I don’t want to die, I’m terrified of leaving you, please don’t let me die, this is my life now and I’m terrified, please I don’t want to die”.
I’m out my dept with this , I had no idea what to do or say. She admitted she thinks she needs to talk to someone, a counsellor/therapist and I said I would help her get whatever help she wants/needs.
My dad also lives with us, but he is completely useless and conveniently slept through all the noise of the crying and shouting that was going on outside.
The next day she said she felt better, but when I brought up counselling, she said she didn’t want it anymore and she would see how she got on.
She has now started making comments constantly about how she “is on borrowed time” and “I’ll be dead in 2 years, you know that don’t you?”.
As much as I love my mum, these are things I don’t want to be hearing and I’m a bit annoyed she finds it acceptable to say these things to her daughter. She doesn’t say them to anyone else and I’m finding it all too much.
She has a very negative attitude and I constantly feel as though I’m walking on eggshells. I feel she may be depressed and I would really like her to speak to someone.
If she does something to upset me and I tell her, she will say “you can’t say that, as I now feel like rubbish for upsetting you, and it’s causing me stress and stress causes cancer”.
It’s feels like some kind of emotional abuse/blackmail.
She also drinks most evenings and I know alcohol is a depressant, but when I have pointed this out to her, she just says “I’ve had cancer, how can alcohol make me feel any worse”.
I’m really at a loss as to what to do. I’m 33, still live at home and I have been at home with her everyday for the past 18 months. I have been working from home and so I’ve dealt with cancer 24/7. My dad goes out to work, so things aren’t as intense for him and even when he’s caught in the middle of upset, he just pretends it’s not happening and goes to bed.
My life has been put on hold just as much as hers has. Everything she has needed to help her through treatment and to make her more comfortable, I’ve paid for. I’ve bought and paid for everything e.g mastectomy pillow, mastectomy bra, chemo journals, books, blankets, pillows, drain bag etc etc etc just to name a few.
She’s currently reading a book called “how to starve cancer”, she says I need to read it as I will then get more of an understanding of what is going on in her head. Maybe I am being unreasonable but i don’t feel it is MY job to understand what’s going on in HER head, that’s the job of a counsellor/therapist.
I’m single and yet to have any children. I worry that my mum won’t see me get married, or meet her grandchildren. I have worries of my own. I have things going through my own head. I don’t need to read a book to understand what’s going on in hers. What’s going on in her head needs to be discussed with someone trained in how to deal with her worries and fears. Telling your daughter everyday that you will be dead in 2 years is not acceptable and I don’t understand why she feels that this is actually OK to say to me?? If the roles were reversed, she would be feeling just the same as me.
My life is on pause, all my money goes on my mum, my own mental health is suffering and everyday all I get told is “I have to make the most of what time I’ve got left, I’ll be dead in 2 years”.
They have booked to go away for a week in September. My mum says it’s because her and my dad both deserve a break after all they have been been through. I was a bit upset, as they seemed to have forgotten that I’ve been through a lot as well and dealt with everything also and so I thought the invite might have been extended to me, but I wasn’t invited. I wouldn’t have gone anyway, as I’m 33 and stopped going on holiday with my parents a long long time ago, but I guess after everything that’s happened, it would have been nice to have been invited and for someone to acknowledge that I too have had a hard time and am probably in need of a break also.
I feel I’m at breaking point. Living in a never ending cancer nightmare surrounded by negativity, doom and gloom and talk of death. But of course, I can never mention anything, “as that upsets her and causes stress for her and stress causes cancer”….. so I guess I will stick to writing on here x
Good morning
I'm sorry you have obviously had a sleepless night and hope you are getting some sleep now.
You are having a very worrying and upsetting time. I'm sending you a cyber hug so you know you're not alone.
I read your post twice as I could see you have a lot of diificult issues, both mum's and then as result, yours, to deal with.
I have no experience of your situation and I am not a Councillor so I'm afraid my answer may be of no help except for you to know that you are no longer dealing with this on your own.
I think, if I was in your position, I would do one or two things.
Firstly, I think there is a friends and family group for people who have relatives with cancer. I would copy your post there. Others who are supporting someone with cancer may be able to help you with better information of support groups.
Secondly, if your mum can use a computer try to get her to chat to us about her feelings directly. She is obviously very depressed and it may help her to chat with others like myself whose TNBC cancer was removed in 2015 and I am still cancer free. She could try Awake as a starting chat group.
I think she does need to talk to someone. Perhaps you could phone and talk to her GP, or BCN, and they could give her an appointment for a ' routine' check up.? I think she would be happy to go to a check up and a little ' white' lie in this case would be a good thing.
I also think you are beginning to get depressed and overwhelmed too. If it is possible to make yourself an appointment so you too can talk through the responsibilities you have been coping with with someone trained to listen, it may help you.
Don't take any notice of things mum says that seem cruel. Cancer changes us all. Many of us use this site to vent our feelings. Your mum doesn't want to worry Dad. It isn't fair but you have become her outlet to express those feelings. Sadly, even now, I have 'what if ' days. I needed all the friends I have here , even though for most I will never know who they are, to express those feelings.
Finally, you have a week to yourself in September. What are you going do? ............Find something you really enjoy to do that week. It will give you a break too.
Sorry I can't be more helpful but I do feel both you and mum have reached a point where you need outside help.
Perhaps other contributors will have a similar experience and more useful ideas?
Take care. Keep in touch. Let us know how things progress. Use the Awake thread for a quick response.
Love Karen
Hi Karen,
Thanks for your lovely reply.
I’m actually signed off work at the moment with stress as I recognised that I wasn’t coping and I needed some time away from the pressures of my job.
I didn’t know there was a family and friends group, I will have a look and copy my post on there.
I’ve been awake for most of the night, partly because I was angry but also cause of the heat!
The problem with my mum is that she thinks getting help is a sign of weakness. So she’s said she needs to talk to someone when she’s been at her lowest, but then the next day, when she’s felt brighter, back tracks and says she doesn’t want to speak to someone anymore.
I offered to pay for private counselling for her and found a lovely lady near by who specialises in illness, life after illness, people coming to terms with terminal diagnoses… those kind of things. But again, with her negative attitude, she just snapped “all private counsellors just want your money, you may not need to see them anymore but they will just keep booking you new sessions and taking your money!!”.
I, and like lots of others, have had private counselling, this isn’t the case at all, but again, trying to help and not getting anywhere.
She is hard work and I’m running out of options with her.
My thoughts now turn to moving out.
I think feel this is one of the only options left to me to escape this toxic environment that is leaving me stressed and awake all night.
I will never have enough savings to put a deposit down to buy a house, but I had some savings aside to help me with a first few months rent somewhere and with money left over to buy what I would need with, plates, cutlery, furnishings etc
This has now all be spent on my mum, and what I have left, I am offering her to have to pay for counselling, rather than waiting to be referred through the gp or going through Maggies.
I feel like a punch bag for her when she’s feeling low, and it isn’t fair. I probably come across as being insensitive, but everyone has their breaking point, and I feel as though I’m at mine x
Hello ,
I’m so sorry you’ve got to this point, but a lot of what you are saying rings so true for me, my mother was an emotional blackmailer too. I think you need to remove yourself physically from what sounds a really hurtful situation, and get some counselling help for yourself. But bear in mind that the emotional call on you may not ease that much either. (In my own situation even with a husband, work and two young children I still had that call.)
yes a Friends and Family group does exist as does a carers only group, and although Carers Only tends to be more spouse-led, you’ve obviously very much been your mother’s carer 24/7
I agree with Lacomtekp that your mother needs qualified help but short of you telling some white lies, for a ‘check up’ it’s not going to be easy for you to get it begun. Has she a breast care nurse? If so, is it possible for you to phone her, and explain something of what’s been going on?
Sending a real understanding hug xxx
Moomy
Hi I would agree with moomy you need to physically remove yourself from the situation, have you got any close friends you could have a chat with, I know it’s going to be hard but you need to do something that’s not cancer related. I’m not a trained counsellor or anything but what things do you enjoy doing, what did you do before your mums diagnosis and before the pandemic. You need to try and do something for you, to heal you too.
As the other ladies have said and I agree your mother needs professional help as she does sound very depressed which is understandable really.
Just so you know there is nothing insensitive about your post.
Sending you really big hugs
Diane xxx
Hi Moomy and Di54, thanks very much for your replies.
Yes I feel I am in a rather toxic environment at the minute.
It’s been hard to physically remove myself from the situation, as I have been working from home for the past 18 months. My mum has been at home while having her treatment and she is yet to return to work, so we’ve been literally living in each other’s pockets everyday.
I used to go swimming most evenings, I found it relaxing and also good exercise but then the pools were closed due to covid and only re-opened for lane swimming. This gave me anxiety and I didn’t fancy lane swimming, so I have given the baths a miss, although with the lifting of social distancing today, I have been checking and general swim sessions have now been added, so I’m really happy about being able to return this week.
I don’t have a massive circle of friends, just a few who I have known for 10+ years but they are not always free in the evenings/weekends when I finish work, and so I don’t see them too often.
I am usually cooped up in the house, dealing with whatever mood my mum is in and listening to whatever negative comments she is coming out with that day, of course until my dad comes home from work and she switches happy. She is honestly like two different people sometimes.
My mum has sisters and I have actually been in touch with them today and let them know that all’s not well and that I need help in persuading her to seek professional help. Funnily enough, I’m yet to receive any replies. I get frustrated that everyone just seems so spineless and buries their head when the s**t hits the fan.
I feel I am left to deal with everything on my own.
My friends are also a bit useless, they will throw me the odd “just don’t listen to her” comment, but it’s so easy for them as they aren’t in my position.
One friend in particular will reply to my messages, but repeat everything back to me by putting “I hope” in front. So for example if I message her and say my mums having a bad time, I feel she needs professional help but I’m not sure what to do, she will reply with “I’m sorry your mums having a bad time, I hope she’s feeling better today and you are able to persuade her to get the help that she needs. I hope your family are able to help you deal with everything that’s happening”. I understand she just hasn’t a clue how to reply and that it must be hard, but at the sad time, it’s just kind of a useless response. So I’ve given up messaging her now or trying to talk to her about how I’m feeling or what’s going on. You ask her about her kid though, or anything where he gets to talk about herself and she soon knows how to reply to messages properly and isn’t stuck on what to say.
I’m just really fed up with it all, I’m fed up of my mum not acknowledging she needs help and I’m fed up with my family pretending everything is fine. I just want my old life back, pre covid and pre cancer.
I have a few things planned for my two weeks off work, I just need to get out of the house as much as possible.
thanks for reading x
I’m so glad you’ve plans for your break, and I really hope it is a complete and total break!
I get what your friend is saying, as you admit she probably doesn’t know what to say or how to help but is not wanting you to think she’s ignoring the situation, to be honest, and it’s better that she does communicate rather than blocking it all, surely? She is at least hearing you!
About the timing, I re-read your post and your Mums treatment really was quite recent, I do suggest a phone call to her BCN may be in order, I know they are busy but should be trained to deal with the psychological aspect of a triple negative diagnosis as well as the physical. I’m sure you will most likely have to do it out of earshot but it might give you a way of expressing your frustrations too?
My situation; (and it was now years ago) I drove the 60 miles to my mothers house after managing to get my hubs to cope with my music teaching and also be there at the music service for our two kids, to find she had staged a ‘fall’ on me, I got GP as well as DN to come out and got her admitted to hospital as she was simply not able to be left and I couldn’t stay. I drove home in tears as I analysed what she had done and how she had made me feel, but it straightened my mind as I saw how she manipulated both me and my brother and came to fully understand why he lives in the USA! It was the last time she was at her home as she later suddenly died still in hospital though almost ready for discharge. So that was a bit of the toxic relationship to explain how I know about manipulation and emotional blackmail. I’ve done everything I can to ensure my life never repeats that pattern!
Hugs xxx
Moomy
Clare I am so sorry that you are going through all of this by yourself. You are a strong lady and your mum is so lucky to have you there to support her in every sense. Click on my name for my story. I have been receiving counselling free through a local charity (I made a donation but no payment is expected). I found it a wonderful support and release despite initially believing it was “self-indulgent” and a waste of time. My misgivings have been completely dispelled. It sounds like your mum is depressed and on a downward spiral unfortunately dragging you down with her. It makes me angry as you are the daughter and she is the mother so it sounds like a role reversal. My son is only 4 but I would hate to think that I would put pressure on him and leave him in a lose lose position.
Maybe suggesting free counselling will eliminate her argument that they are “only in it for the money” aspect. It is a personal thing but I think you would benefit too from counselling as you have been through the trauma too. It’s a horrible thing to say, but perhaps a bit of tough love is required here. I feel you should look after yourself and it is not being selfish, it is something you deserve even if you don’t initially believe that. Don’t feel guilty for spending time clearing your head and switching off as much as you can as you need that for your own welfare and mental health. Have you looked into the possibility of living elsewhere in order to create more of a boundary for your life? I don’t want to you to be offended but it sounds like your mum is taking you for granted which is bringing you down big time. Cancer is scary and I live that reality everyday but I don’t take it out on friends and family.
You are doing amazing and, as I said, your mum has been so lucky having you there to look after her. The pandemic has been stressful enough. As you have been doing, get back to the things you love and that make you feel happy, more like ‘you’ again.
Big hugs, Bekky xxx
Hello,
How are you feeling this evening?
I see you have had several very helpful suggestions during the day. I thought you would. This is an amazing site, full of support and experience.
I suspect, because it is another hot night, that sleep might be elusive. Don't forget to check out the Awake thread in the chat section. Whilst you can discuss anything on that thread and it will always be taken seriously, there are moments for laughter in the posts which might help relax you. Another nice thread is Walking back to happiness. The posters there share photos from their daily walks, sometimes long hikes,other times just the walk to the chemist or walking to cut the grass. It can be full of fun but sometimes it's just what is needed to move our thoughts on.
Did you manage to speak to your mum's GP or BCN today? If your mum could start chatting to someone, I'm sure some of your stress will disappear. Whatever happens you must not feel guilty. You have been an amazing support for your mum......perhaps moving out might be a solution but don't rush into your decisions. Unfortunately everything has been weigted against you.....mum not coping for herself , the pandemic closing down support networks like Macmillan or Maggies that would have helped much earlier, you having to work from home which meant you had to support your mum 24/7 and allowed her to use you so she could cover up her real situation with her sisters and your Dad. This is a long list and it's one you will need to work through carefully.
I'm going to sound like your friend now because I'm going to hope you do get some sleep. I'm actually hoping that knowing that you are now not on your own, that nobody thinks you are uncaring..in fact the opposite....will enable you to relax and recuperate.
Take care. I will be around early morning but I'm off to bed now.
Good night.
Hi Bekky, sorry for the late response!
I have counselling myself at the minute but I have to pay for it. I’ve mentioned Maggies to my mum but for some reason, she just won’t take that first step and go, even though I have said I will go with her over these next 2 weeks while I am off.
I am going to my friends today and then I am out all day tomorrow on a day trip. So, it will be good to have some time to myself away from the house.
I spoke to my auntie yesterday and asked if she could also mention counselling to my mum the next time she speaks to her. I think we now need other family members to speak up instead of burying their heads. She agrees that my mum needs outside help and said she will do her best.
I think you are right in that my mum takes me for granted. I’ve done everything I could have done for my mum, I’ve always been here, put my life on hold, I kept myself isolating at home with her from August last year till March this year to keep her safe from covid and also any other infections. I didn’t see any of my friends or go anywhere, I’ve made lots of sacrifices for her well-being, but it’s now time to start looking after myself again.
Thankyou for your reply x
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