I keep reading here about people having treatment plans and how things feel better when you have it. I've been told that I need a mastectomy without reconstruction, radiation (no details) and a node dissection thing. Is that a treatment plan? Apart from the surgery and pre-op dates, I don't have any details, I don't know how long anything will take, or what to expect. The consultant gave me contradictory information to the nurse about duration of hospital stay and how long I'll have drains in my chest, so I dont know what to expect there. And I've been given a little pink folder but the pages are mostly all empty except for the mastectomy date (23rd June) and type of cancer. Does that really constitute a treatment plan? Or will that come after mastectomy? What was your experience of a treatment plan?
Hi MoominAncestor welcome to the forum and you are absolutely right you have a rough outline of a plan but not detailed as yet and you are right in that all this will be given after surgery and when all the Pathology from what they take in surgery, not just the breast but any lymph nodes that get taken and sent for testing. You will most likely be in hospital for 3 days or maybe longer in some other areas and some quicker in others. The drain may be taken out before you go home dependent on how much fluid it is draining from your wound. If it is still draining a fair ammount of fluid then they will leave it in for a few days this is something that you need to ask after surgery and before you go home.
Once the pathology is all back you will get an appointment to see the Drs at the breast clinic and then the treatment plan of maybe chemo maybe not, maybe radiotherapy, maybe not, maybe hormone blockers, maybe not as you can see so much is dependent on the pathology results as to the next step.
Hope thats helped and I haven't confused you even more ? xxxxx
Thanks Granny59. That's much clearer. Funnily enough, your estimate of hospital duration is the third different one I've been given! I'm starting to think that the consultant was playing good cop / wishful thinker coz he told me I would go home the same day. But the nurse I saw afterwards and the folder-of-not-much-info both say at least an overnight stay. He said I would come back 3 days later to have my chest drains out, but elsewhere I've been told 2-3 weeks. It sounds like I'll just need to wing it, but it makes it very hard to manage my other health conditions when I can't prepare
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