I had a lumpectomy in November and was told afterwards that I'd need Chemo. I was booked in, I psyched myself up for it, bought some head scarves etc. Spent £400 changing my holiday from May to September (and now covid would have changed it for me for free). My friend also found out she had cancer and we had our ops 3 weeks apart. Anyway. The day before my first session. It was cancelled as the ki67 result came back and put me at 1% under the threshold. Yes I was elated at not having to go through chemo. But also worried that the 1% didn't seem a lot. And I'm hoping radiotherapy is enough on its own.
Anyway fast forward a month and my friend had her first Chemo and was so poorly she's been in hospital with a type of sepsis and has been suck as a dog and lost all her hair.
I've only had radiotherapy which I finished last week and just feel exhausted. Today I was supposed to go for my covid vaccine, but it was a 20 minute drive. I had a shower and during drying my hair I just burst into uncontrollable tears because my forearms and wrists ache so much, I was struggling to lift my arms, not from the op, but due to them feeling like dead weights. I knew I wouldn't be able to drive the 20 mins there & again back home. So I cancelled it.
Now I'm laid in bed feeling completely drained and burning up all the time, but also guilty that I'm making a fuss over it when my friend has been so poorly. I should be celebrating that I'm kind of at the end, not feeling knackered and deflated.
I need to seriously pull my socks up and just get on with it now. There's no bells to ring after radiotherapy, because it's not a big journey or a mountain. 6 months and I've gone from oblivious to it, to finished. Bye bye. I feel so guilty for not feeling happier. And such a baby for giving in to dead arm and fatigue.
dear
Don’t feel guilty , I know that’s easy to say , I feel guilty about lots of things but I know in my heart of hearts that it’s an irrational feeling . Don’t full your socks up but be kind to yourself . I’m 3 years from first diagnosis and I can honestly say it’s only in the last 6 months that fatigue has left me . Chemo brain not long gone too !! The elation of following a knitting pattern was immense! Knitting also helps my fingers which are left with peripheral neuropathy and arthritis brought in with treatment. I didn’t get radiotherapy. I had chemo . If you look up my profile you will see my journey .
May my aqua aerobics class ( oh to get back to that !) there are 2 ladies who had breast cancer 10 years before me and both living life to the full .
I have recently lost friends to different cancers and I felt very down but I gave myself a talking too , I’m alive , I’m well and I MUST live my life in honour of them . They wouldn’t want me to be sad . Your friend will want to see you well , so be kind to yourself . Get up and shower and if you want a lazy day , then put in clean pjs and some perfume , wee bit lipstick and blusher - then when you pass a mirror it’s your reflection you see .
not every hospital has a bell for finishing chemo , because not everyone gets to finish treatment - some receive chemo for years and are living good lives . Don’t say you only had radiotherapy as it’s a very very strong treatment .
I was told fatigue can last over 2 years and it did . In the beginning I had a day at home , then a day out - even a walk.Do not fight fatigue- you can’t ! You must rest , read a book , I enjoyed jigsaws - sort of accomplishment! I sent one to a friend going through treatment just now snd she says she is determined to finish it !!
I hope you have rescheduled your vaccine, explain how poorly you feel to be able to drive. They may be able to offer you a different way of receiving your jab or give you another appointment.
I hope you feel better soon , with everything happening in your life and with covid , it’s only natural to feel down. Things will get better , spring is on the way and hopefully we can see friends again soon .
take care
love Ruby Rose
Hi,
Don't feel guilty. None of the treatments are easy and do take a while to recover from as Ruby Rose has said so well. I had started in April 2019 with chemo, followed by bilateral surgery and then radiotherapy which I finished just before Christmas 2019. Have been on Letrozole since. I too have peripheral neuropathy from the chemo, quite badly in my feet and I get days when I feel very tired, but I don't try to fight it. I too try to be kind to my body, and take it easy usually with a cuppa and a book. I just say to my husband I am having an easy day today and that's it... Although I am 74, I like to do my hair (which has now grown back quite well) and put a bit of lippie on. It does make you feel better. I am lucky to live near the sea and do walk up to the clifftop to get some exercise, and for a few days this week for the first time I have managed to walk down the zigzag to the actual beach. I was a bit daunted about the climb back up, but i made it with a few stops here and there. But i felt so much better for it..... so go with the flow. Listen to your body...I know I still have a way to go yet, but yes spring it on the way. Try not to get down Suzysue.....keep postive..Lots of love..xx
Sorry to hear you are feeling so fatigued. I've suffered with Fibromyalgia and Chronic fatigue for many years now and it is really hard to manage if you are not used to it. I was the same as you, bursting into tears as you couldn't do normal things anymore without just feeling so drained and limbs feeling heavy.
I done a support class and they taught you about pacing yourself and limiting high activities (such as driving, housework, or anything you find tires you out). Its difficult to do at the start but I hope it does get better.
I just have to plan a bit more now, so if I know I need to do something like the covid vaccine, I will literally do nothing else that day, even the washing up will stay in the sink!
Have a look at the spoon theory to see if that's any help for you. And remember, it's not weak to ask for help.
Feel better soon x x
Suzysue22 the emotional journey of any cancer I think is harder than the physical journey mainly because the physical aspects are so easy to see and discuss with others. Emotionally the rollercoaster nature of it just grabs you when you least expect it so never feel like a baby. Go with it and get it out. Six months is still early and to expect yourself to have got over it maybe something you should not worry about. Take each day as it comes and always try to find something to look forward to. So you did not make it to your appointment but you can rebook it! There is your positive.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007