Hi, not sure what to write. Feeling a bit scared and lost and just wanted to connect with all of you who have been through this. I got diagnosed yesterday and I'm so grateful I found this forum. It has helped so much already. I'm so anxious and scared that I have completely lost my appetite and just doing normal everyday jobs is so difficult. I'm currently spending a lot of time reading peoples stories and replying to some. I assume this is normal, has this been the same for any of you? Waiting to do the MRI and worrying about any more surprises and bad news is really tough.
Hi, so sorry you are going through this, you are not alone, everyone on here is or has been through the same and knows how you are feeling. Its a horrible time but you will find the help you need to get through this. What has your doctor said to you? Have you been given a treatment plan? Waiting for results and scans is the worst bit. Have you spoken to the breast care team? Sending big hugs. Anna Xx
Hi Anna, lovely to hear from you. Very early days so no treatment plan yet. MRI on Monday and results on Tuesday. Waiting for the full biopsy results as well which will also determine treatment plan. I am petrified of what the MRI will show and afraid of the obvious worst case scenario. I'm not worried about surgery or a mastectomy or any of the rest particularly I just worry incase it's not curable. I have no reason to think it is or isn't I won't know till Tuesday and the waiting is agonising.
I hope things are going well for you. Where are you at with your treatment?
Hi I have an mri on thursday, was just wondering if your sizing was that much bigger on mri, so far I know my size is 11mm, had mammogram, 3d mammogram ultrasound and vacuum biopsy. Many thanks xx
Hi Shaz52, gosh it's all a bit of a blur now thankfully. I think it's only after the MRI that I was told the size as the mammogram and ultrasound didn't really give a clear enough image. The doctor who did the ultrasound and biopsy was convinced it was all going to come back as non cancerous.
I think that often the sizing on the ultrasound does match what the MRI shows but that sometimes it doesn't.
I might be able to help more if you can tell me what specifically about the sizing are you worried about.
Hopefully after your MRI you will get your treatment plan and then you should start to feel better and more in control. Having a plan of action to focus on really helped me.
Hope all goes well with the MRI. You can and will get through this x
Thank you, so far been advised my sizes are small, have two areas 5cm apart from each other, my plastic consultant advised because I have large breast they can look at doing a therapeutic mammoplasty, but am needing to have an mri to give them a better picture of my breasts. One area is 11mm n other 12mm so hoping mri doesn't show them to much larger. In my head thou prepared for other option masectomy with reconstruction. I have been started on hormone meds because of slight delay in surgery xx
I had therapeutic mammoplasty on one, where I was told only by the Oncologist this week, were aggressive cancers, very very pleased with the result. Radiotherapy on this one follows once referred. Can recommend that.
Thankyou what did your results show, what is your next treatment plan xx
Results of op were that Surgeon was able to get clear margins and 3 nodes removed on that side, one being inside breast - all clear. Results very good. Not so happy with implant as got that haematoma on that side, and had to be done all over again to have all the blood cleared out which collected but the "look" of it is OK, but no nipple that side. Nipple, when tested, was actually clear, as were 2 nodes removed that side too. BC Nurses still doing weekly check on the dressings and I have appt. tomorrow. I got slightly concerned about whether the haematoma could come back again, as a bit of swelling which is still there, so they are keeping an eye on it. I don't know where or why there was a "slow bleed" but I was disappointed/frustrated/crying etc that had to have it done all over again and have a second op. on the mastectomy side. My prob. at the mo is movement of arm not good on implant side as there must have been a lot of surgery done - that will no doubt return in time. I am doing the exercises but not noticeable improvements. Next stage is radiotherapy for 10 days on the mammoplasty side, won't need it on implant side. You should have an Oncotype test done where they send your tissue to USA to see if you would benefit from chemo. If low score out of 100 you wouldn't benefit from it. I wouldn't. Clever stuff !
Thank you what was the sizes of your areas pls xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007