Hi Guys and Gals.....
Well just a update really, had MRI last Tuesday on the 10th which was a giggle under the circumstances, never been to one, however sorry but the Radiographer was very easy on the eye, should i say that, needless to say first time i put the gowns on wrong, and then i stripped off not fully realising that you can leave your bottom half on ha ha ha much to the amusement of the nurse that was in attendance bless her, god knows where my head was at. Anyway the MRI itself not as bad as i thought it would be, i found that making up tunes to the constant banging and clattering helped, as im used to that noise, due to sharing a house at one time with 4 unruly teenagers.
So everything went ok, got through that, unfortunately had the bad news that my oldest son his partner had miscarried their baby so that was a bad day.
Prior to this my manager has let me work from home, as she does not want me to risk catching the lovely COVID and then this potentially delaying any treatment or surgery, was a bit gutted but totally understand, had a slight meltdown because i felt that that was another hold this dam ninja had on me.
Anyway fast forward a week, and its been up and down, emotional but i expected that, got a telephone contact from the BC on Thursday of last week to say that i have to go back on the 26th November, due to the MRI showing enhancements in both breasts, however the Ninja is behaving and has not got any bigger. I am aware that this can happen but again sets the seeds growing of worry, its weird the capacity we have to take things on board and go with it, i have found this over the last few weeks.
So i will be spending half of my birthday having ultrasounds and potential biopsies but small price to pay for enjoying plenty more birthdays that is how i like to think of it. If all goes ok on the 26th then i should be on schedule for surgery, and the rest of the treatment plan, radiotherapy and hormone therapy, does anyone know if you can request the Oncotype testing service?
If things do not go so well then looking at surgery mid December, followed by treatment etc.
I have read so many stories on here which have filled me with such positive vibes, so i thank you all for that. Its strange how life rolls on, some days i can almost forget that i have something inside of me that is sitting there waving its ugly tendrils mocking me, and then some days it hits like a slap in the face with a wet sock. As you can tell by now i have quite a dark sense of humour, it helps..........
How has everyone found dealing with relationship side of things, i had a meltdown the other day that my 'best friend' would not find me attractive, or that i would totally go off that side of things, not the most important thing i know, anyway we did have a good chat about it and a laugh and cry, as he is going through some health issues himself.
That's enough of me rambling if anyone wants to chat vent or just needs a ear I'm more than happy to be a sounding board.
In the great words of Buzz Lightyear 'To infinity and beyond', and yes i have had a weekend of Toy Story with my lovely uncomplicated beautiful granddaughter.
Hi PatsyP2
My original diagnosis was a papilloma so they only took the 2.5mm lunp away as it was the gold standard for that diagnosis. Cancer wasn't expected they just wanted to be sure. So I wasn't even going to take anyone with me to my results appointment but my daughter insisted. I am so glad she did as it was totally unexpected to be told it was DCIS.
It had got past Mammogram and ultrasound with biopsy showing the papilloma result. MRI has shown its not invasive but I'm never confident until its been looked at under the microscope.
The clearance I was told would be a shave of tissue so max of 2mm of healthy tissue. So I was surprised when the nurse told me it was so much bigger.
Will just have to see what the microscope tells us. I will be taking my daughter with me again, not risking being on my own.
I am confident that ultimately I will be 9k with such great odds for DCIS. Its just getting from here to there.
All I will say is that I'm feeling a bit battered so don't be surprised if it knocks you back for a few days.
Let me know how you get on Good luck. Debs x
Hi again Debs. That makes sense - I think I misread your previous post regarding papilloma. That must have been big shock for you at your results. And I am sure you will be absolutely fine. Like all of us you have to get from here to the end point with whatever treatment is needed and the whole emotional turmoil and it certainly isn’t easy for anyone but you do know that your prognosis is good.
I am hoping my ‘shaving’ will be quite small I had clear margins of over 1mm apart from at one point where the margin was 0.7mm - so close!! My consultant said the op will only take around 20 minutes & I am holding onto that and the ‘almost there’ result that I already had!
Hope that you soon recover from the surgery- it can take time. I had node clearance as well as lumpectomy last time and - apart from a bursting seroma which resulted in 3 hospital visits for draining/dressing - recovery was pretty good. So fingers crossed for a quicker recovery this time - and a good result x
it was so embarrassing lol at least i know now ha ha ha
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