New To Three Negative Breast Cancer

FormerMember
FormerMember
  • 16 replies
  • 281 subscribers
  • 3743 views

Thought I'd introduced myself. I am 32 years old. I am a wife and a mum of a 2 year old. I have been doagnosed with a Three Negative Breast Cancer yesterday.  This is a lot to take on being a breadwinner and only having my husband around and we don't have any other family around.  I feel as though my life has been turned up side down. I have been told I have to have chemotherapy and still not sure how I feel about it but yet I want to live and see my son grow up.  Any tips if any of you thought about natural remedies over hospital treatments. I'm so torn and devastated and my mind is all over the place. I told my family via zoom and two of my friends. My husband doesn't know yet as he's not home until Friday and that's when I need to break the news even though he's just dealt with burying his sister on Wednesday. It's too much. How are you all coping any advice would be great. 

  • Hi

    I'm very sorry that you find yourself here, but great that you have found this Macmillan site so soon after having been diagnosed.  I am sure you will find it a great help on the way forward through your treatment with plenty of of women (and some men) who've been there and are still going through it.

    There are 2 other groups that will be very useful for you to join (although this main group is by far the busiest - and in fact the busiest on the whole of the community given the prevalence of breast cancer). Click the links and join these two groups as well. Under 50's breast cancer group and this one: Triple negative breast cancer group.

    With regards to natural remedies vs hospital treatment: If you use Dr Google you will find that there are amazing things to prevent cancer and these will be from companies trying to flog their products and have no evidence that they work!  I read an article once (before I had cancer) about a famous lady (can't remember her name) who's daughter had read that apricot kernels were a cure for cancer.  She hadn't read however, that they were actually poisonous and ended up poisoning herself as well as allowing her cancer to grow and eventually died.  There was a lady on this forum whom I started reading her thread after I was diagnosed 3+ years ago and she opted for natural methods.  She would have just had a lumpectomy (wide local excision as it's now called) and taken tablets for oestrogen positive cancer and radiotherapy. She opted for the tablets and natural remedies. It spread and I read with deep sadness earlier this year that her story of over 5 years had ended with her passing away.  She was a trail blazer and spent a lot of her time trying different non surgical treatments in conjunction with her oncologist, but had she opted for treatment at stage 1, would she still be with us now?  

    My personal view is this:  The treatment for cancer has been developed by the top minds - surgeons and scientists around the world and they are sharing all this information around the globe.  Given this, then why wouldn't I trust them over and above a company trying to sell their products?  I didn't need chemo. so I can't give you any advice regarding this, I just needed a wide local excision and radiotherapy and apart from the scar, popping a tablet every day and coming onto the  Macmillan site I wouldn't even think about having had cancer now!  Trust your team and be reassured that the treatment is the very best that you can get.  Less than a year after I was diagnosed new treatment was available with regards to oestrogen positive breast cancer -  so things are developing day in and day out.

    If you want to research don't use any old site for the very reasons I have described above.  Cancer Reasearch UK, Macmillan, breastcancerorg.uk are all trusted websites.

    Try not to think of your diagnosis as a death sentence because it isn't.  Take each day at a time and each treatment at a time and you will find that you and your husband will have the strength to get through it.  I personally found that the fear of everything was so much worse than the actual going through it. 

    Keep chatting and asking for advice on here and you'll get lots of support and advice.

    Kindest wishes,

    Lesley x

    Community Champion Badge

  • FormerMember
    FormerMember

    Hi Lenka D

    I am a Mum of a wonderful 11 yr old and 9 yr old. I was diagnosed with ER+ breast cancer completely out of the blue (it happens to other people - not me...) I have it in one of my lymph nodes too. I can’t describe the fear... not the fear of dying but the fear of missing out on my kids lives. Not being here for them when they need me. It was and is a terrible feeling that unless you have been given a cancer diagnosis I don’t think you can ever really understand. For me the moment I started treatment the fear has got better.

    I am having chemo for 6-8 cycles then surgery then radiotherapy. I started my chemo on 21 August. I cried when they put the cannula in... but now I’m looking forward to my next dose, as it’s a step closer to beating this. I won’t lie, chemo isn’t great, but the drugs are so much better now particularly for breast cancer. I still do the school run, help (do) their homework and act as taxi service for various sporting events. I also work full time - at home - in fact apart from my chemo days I haven’t had a day off sick. I’m more tired than usual but the meds they give for side effects are really great. I know that eventually I will need to go off sick but I am hoping to get at least half way through first. I hear Docetaxil is tougher than the EC you tend to start with.

    My advice to you is focus on what matters most. It will be tough and you will be amazed how supportive people are. The science shows that medical intervention for cancer improves your chances of beating it. The rest is a positive attitude. I work for the NHS so I might be biased but when in doubt follow the evidence. The overwhelming evidence is that hospital treatments give you the best outcomes. But it’s scary, really scary - be strong and positive - you can beat this, whatever you choose to do, you will make the right choice for you. 

    We are all here to help too!

    xxx

  • Hello 

    In Oct 2015, I was diagnosed with BC which was analysed as triple negative. I had a lumpectomy followed by chemotherapy and radiotherapy as a preventative measure against the cancer returning. So far the cancer has stayed away and I have been told if TNBC doesn't return in five years, there is a good chance it will stay away.

    So Lenka don't despair. The following months may involve treatments that are unpleasant but these days, often personalised to help your situation, there is a very  high chance of recovery. 

    And having found this site, you can ask all the questions you want or just express your feelings. Someone who has shared your experiences will be there to answer or simply listen but you will get all the help and support you need.

    I hope your treatment goes well. Cyber hugs.

    Love Karen

    1. I
  • Hello ,

    You have everything to live for with a husband and a 2 year old son.I too am probably biased to conventional treatment as I was a nurse, but I am living proof that it really does save lives.Please do not be tempted to look at Dr Google as it is often outdated and not at all helpful.Use the trusted sites and speak to your breast care nurse who will know about your particular cancer,as well as reading other posts on here . You are not alone most of those on here have been there and bought the tshirt and have a wealth of knowledge and helpful tips. Make use of them and the only silly question is the one you don't ask. You will come to terms with it all , shock though it is and we really understand how you are feeling at the moment. You may find friends and family will try to cheer you up rather than discuss "it", but you will be selective after a while in who you speak to.I wish you well in your treatment and hope you are able to put your trust in your team as I did. Sending big but gentle hugs XXXKwissy

  • FormerMember
    FormerMember in reply to Lacomtekp

    Thank you for sharing your story also and congratulations for getting through it. Your words are very kind thank you x

  • FormerMember
    FormerMember in reply to Kwissy

    Thank you for your kind words x

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you so much I have my fingers crossed for you also. Well done for doing everything else on a side. I am very anxious but I am staying strong for now. I have my consultation this Friday about next steps. :/ x

  • FormerMember
    FormerMember in reply to lesleyhelen

    Thank you much for your kind words. x

  • FormerMember
    FormerMember in reply to FormerMember

    Good luck with your appointment tomorrow,   

  • FormerMember
    FormerMember in reply to FormerMember

    thank you very much. X