Letrazole

FormerMember
FormerMember
  • 11 replies
  • 274 subscribers
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I have been taking letrazole for a year with minimal side effects, Teva brand, now they have discontinued it! I have tried Cipla and had the most horredous chest pain! I wonder how others have got on with different makes please! ?

  • I seem reasonably ok on Accord, had to battle to keep getting it. It seemed one of the ones with least a/es when I looked through loads of information.

    hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Thank you Moomy that is the one the pharmacy are getting for me to try  I think. Its so frustrating when these things happen and upsetting too. Hope you are well.

    Love xx 

  • FormerMember
    FormerMember in reply to moomy

    Thank you Moomy that is the one the pharmacy are getting for me to try  I think. Its so frustrating when these things happen and upsetting too. Hope you are well.

    Love xx 

  • I’m about to swap to Tamoxifen (I already had mild osteoporosis pre bc) as they are hoping that will be kinder to my poor old bones! 
    Hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Interesting, my dexa scan showed very border line oesteoporosis and I was started on alendronic acid and calcuim. I struggle with the calcuim Nauseated face and stopped the alendronic acid during lockdown due to persistant toothache and no dentist! I felt so much better since I stopped that I thought it must have been letrazole but obviously not! I see my consultant next month so have all manner of questions!

    Love xxx

  • I take vitamin D3 only as I have adequate dietary calcium, but have been on Alendronic Acid for a good few years. I know that it causes indigestion, as does the statin. I had a bad case of hives, and was taken off several drugs including them as they interferes with the strong antihistamine my Doc put me on. And till I went back on them all indigestion stopped! Ha! 
    ive been told I need to stay on the Alendronic Acid at least till I stop Letrozole. 
    Hugs xxx

    Moomy

  • Typed all that, got thrown off the site before it would post! Fortunately I had copied in case!

    Hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    I spoke to muy GP and she said stay off until dentist review. I was worried I had problems with my jaw bone due to the alendronic acid as the toothache was not an abscess ! I so hate tablets, I walk 3-5 mls each day, have plenty of calcium vit D is not so available in Scotland! The calcuim tab includes vit D! Will see ehat consultant says! I guess I am an appalling patientBlush

    Love xxx

  • My first ever pack of letrozole was Cipla, and after 4 days my hands cracked when I opened and shut them! I immediately contacted my doctor and asked for another prescription and requested Accord. Which a lot of people seem to get along with. I took them  for a couple of months, grew a fine downy fuzz over my face, had some joint pain and thought I was doing OK before a retinal detachment (rare side effect). I've  since tried Sandoz (made by the people who make Femara brand and available in Spain) which gave me chest pain and dizziness as well as some  joint pain,  Femara, the holy grail of letrizole and my doctor gave as an NHS prescription (headaches, dizziness, joint pain and ulcer in other eye which wouldn't go away), and finally  1/2 a tablet of Accord and Femara on alternate days.  My ulcer in my eye spread across the inner lid and started creeping up the  actual eye,  so after seeing an optician I stopped at the end of last month. About to start exemestane, and hoping it will be better. I don't want to give up  as the gain is 4.5% in 10 years. 

    Anyway,  Cipla is known to be a bad one for side effects,  so ask for a prescription and then take it to a chemist who can give you Teva or Accord. If they don't seem better try to get Femara written on the prescription by your GP, and give that a go! X

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • FormerMember
    FormerMember in reply to Londonmumof2

    Londonmumof2 I am sorry to hear of your problems. I think its accord I am getting to try. I have emailed Teva and they have discontinued it which is such a pain. I have tried every pharmacy in Inverness and not one have any Teva. I will see how I get on with the one they have ordered with Teva apart from hot flushes again and my ankles ache at times oh and some weight gain which I do not like I was ok with.

    Thanks for your advice xx