I have been taking letrazole for a year with minimal side effects, Teva brand, now they have discontinued it! I have tried Cipla and had the most horredous chest pain! I wonder how others have got on with different makes please! ?
I’m about to swap to Tamoxifen (I already had mild osteoporosis pre bc) as they are hoping that will be kinder to my poor old bones!
Hugs xxx
Moomy
Interesting, my dexa scan showed very border line oesteoporosis and I was started on alendronic acid and calcuim. I struggle with the calcuim and stopped the alendronic acid during lockdown due to persistant toothache and no dentist! I felt so much better since I stopped that I thought it must have been letrazole but obviously not! I see my consultant next month so have all manner of questions!
Love xxx
I take vitamin D3 only as I have adequate dietary calcium, but have been on Alendronic Acid for a good few years. I know that it causes indigestion, as does the statin. I had a bad case of hives, and was taken off several drugs including them as they interferes with the strong antihistamine my Doc put me on. And till I went back on them all indigestion stopped! Ha!
ive been told I need to stay on the Alendronic Acid at least till I stop Letrozole.
Hugs xxx
Moomy
I spoke to muy GP and she said stay off until dentist review. I was worried I had problems with my jaw bone due to the alendronic acid as the toothache was not an abscess ! I so hate tablets, I walk 3-5 mls each day, have plenty of calcium vit D is not so available in Scotland! The calcuim tab includes vit D! Will see ehat consultant says! I guess I am an appalling patient
Love xxx
My first ever pack of letrozole was Cipla, and after 4 days my hands cracked when I opened and shut them! I immediately contacted my doctor and asked for another prescription and requested Accord. Which a lot of people seem to get along with. I took them for a couple of months, grew a fine downy fuzz over my face, had some joint pain and thought I was doing OK before a retinal detachment (rare side effect). I've since tried Sandoz (made by the people who make Femara brand and available in Spain) which gave me chest pain and dizziness as well as some joint pain, Femara, the holy grail of letrizole and my doctor gave as an NHS prescription (headaches, dizziness, joint pain and ulcer in other eye which wouldn't go away), and finally 1/2 a tablet of Accord and Femara on alternate days. My ulcer in my eye spread across the inner lid and started creeping up the actual eye, so after seeing an optician I stopped at the end of last month. About to start exemestane, and hoping it will be better. I don't want to give up as the gain is 4.5% in 10 years.
Anyway, Cipla is known to be a bad one for side effects, so ask for a prescription and then take it to a chemist who can give you Teva or Accord. If they don't seem better try to get Femara written on the prescription by your GP, and give that a go! X
Londonmumof2 I am sorry to hear of your problems. I think its accord I am getting to try. I have emailed Teva and they have discontinued it which is such a pain. I have tried every pharmacy in Inverness and not one have any Teva. I will see how I get on with the one they have ordered with Teva apart from hot flushes again and my ankles ache at times oh and some weight gain which I do not like I was ok with.
Thanks for your advice xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007