Peripheral neuropathy

Hi Loffie, I had different chemo treatment to you and finished in March and I’m sorry to hear about your feet. I experienced peripheral neuropathy in my hands not my feet and checked with my acupuncturist if he could help but he said he didn’t have much luck with it. A friend said the only relief she had was from a homeopath, so I gave that a go and I’ve been seeing one via Zoom for about 6 weeks and the pins and needles has more or less gone. May be worth giving it a go. Good luck. Sarah 

Hi there,  my oncologist said that some people develop PN in the months after chemo has finished as the cells go through their life cycle,  so it's possibly that.  She said it often improves over time,  but there are medications to help. 

It's so hard to work out what has causes what isn't it? I cooled my feet and hands during my Paclitaxel infusions so mostly have PN in my lower legs, but the letrozole also caused muscle and bone pain,  and the Zoledronic acid caused really bad pain in my right leg for about a week after the first one. Fingers crossed for you seeing some improvement! xxx

Thanks Sunshine. Sorry to hear that your hands were affected but sounds like you’ve had some relief. I’m unfamiliar with homeopathy so will have a look about what it entails and how it works. Hope your hands continue to improve!

Thank you Londonmumof2. Although I used the cold cap during my chemo (very successfully I might add - I kept my hair!) I wasn’t offered any hand or feet cooling and didn’t even know that was possible. The useful things you learn after the fact!

Sorry to hear you have PN in your legs though. I think the combination of all the different drugs doesn’t help and can become overwhelming especially if your body isn’t used to having any medications at all.

I’ve not really had much input from my oncologist but am seeing them next week, as well as trying to get an appointment with the hospital pain team who are experienced in PN. I’m really hoping they can suggest something as my step count has gone from over 10k/day to 2k if I’m lucky!

Keeping my fingers crossed for you too xx

Hi Loffie, I haven’t used homeopathy before either but the pins and needles in my hands was waking me up 3 or 4 times a night. It was so bad I’d have to get up to shake my hands really hard to stop the pain. I’m having my third treatment on Wednesday this week but I’m so impressed at it having made a difference. I hope you find something to relieve your feet. Sarah