Hello does anybody know if you are allowed to take someone with you to chemo during this covid?
Thanks in advance
Thanks for clearing that up, I wasn't expecting it considering the covid but thought I'd ask, xx
Hi
Its a shame you can't take anybody with you .I was lucky and finished chemo before Covid .To be honest because I was on EC the nurse was next to me all the time so I was talking to her most of time .
I would take magazines ,books or iPad with you . I'm still on a three weekly cycle for herceptin injection so not there very long but In my unit because of Covid they have reorganised appointments. This means not many in unit for you to chat to so go prepared to occupy yourself with something .
By the way it won't be as bad as your imagination is telling you . Listen to your body and rest when needed
margaret
Ahh thanks so much for the feply and info that makes me feel a lot more reassured, I'm still a bit mixed up with the whole treatment thing I'm sure il know more once iv had my heart scan and details down on paper, I know il b having the chemo 1ce every 3 weeks but mixed up about the herception, does that get giving 1ce the chemo is all finished?
I will pack my self a bag off goodies
Thank you
Depends on your plan things like type of cancer , age, pre or post menopause. Look on my profile .. click on my name .. I’m post menopause and am HER2+ so had mastectomy then chemo ECx6 now Herceptin three weekly til next Jan . Your plan will be individual to you . Ask at unit if you are unclear about anything and write down questions for onco .
It will help you if you go to the chemo thread you’ll find it by clicking on discussions it’s at the top . Lots of hints and tips and people getting chemo now
come back on with any questions have a browse around . Awake thread nearly always has someone on chatting
just looked at your profile and see you are her2+
Im not ER so plan most prob different because of age and hormone based just ask at unit /onco they will explain
margaret
I seen the onc last week and he wrote on th papers 3/4 of the chemo and 3/4 of the herception said it would take around 5 month but il definitely be writing a few thing to ask because it just goes from your mind when your in the room as u obvs know haha,
Thanks I will have a look on the chemo page,
Didn't realise how many different types there was until your bang in the middle of it
How have you found the whole thing treatment, opp?
We’re all different personally I found that Side Effects were manageable . Just don’t expect to be completely free from them or get them all . Nausea tends to be a given so take the meds and ask for different if you not coping . Steroids keep you awake and active also hungry lol for carbs just eat what you can when your body tells you to . Fill your fridge with small snacks cos little and often works . Lots of hints on chemo hurst page link
i coped quite well but I’m stubborn and don’t give in so rested but tried to get out every day . My first annual mammogram was today . So still here and went into shielding bald and came out with hair
have to say night now need to sleep
by the way if you want to tag someone when replying then use @ then the name it will appear highlighted click on it . The person will be notified
night
margaret
You sound like a proper warrior NorthernerNortherner I hope I can manage mine which ever I may get, I hate feeling sick nocks me dizzy and everything that's 1 of the things I'm dreading but il take anything thats thrown at me,
At the minute I'm not to worried about my hair but that will no doubt change 1ce it actually starts happening, the kids think it's hilarious which helps
Hope all goes well with your mammogram
Good night & thanks for the tip
You'll be fine keep your sense of humour it really helps check out the Awake site a lot of experience and support on there more importantly we're all known as the fruit loops you'll see why when you have a look .
I had my mastectomy and sentinel node (5) within 8 days of diagnosis and to be honest it was fine ..discomfort rather than pain . A year later still some nerve pain on occasion I didn't want reconstruction . So have a silicone prosthetic (clarrisa) It works really well . The radiographer got very confused yesterday before I took blouse off ,as she hadn't realised and thought I'd had reconstruction lol
with regards hair I went to pixie cut prior to chemo so it wasn't such a dramatic loss . Plus you handle it less hairdresser kept it cut going shorter with each loss. Then no 2 shave just before laschemo . Hair started to regrow about 8/12 weeks after final cycle . Back to short pixie style hairdresser tidied up with trim last Saturday
margaret
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