Letrozole and Vitamins

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Hi everyone

Hope you are all doing OK today. Just wanted to get some opinions on Vitamins after active treatment and whilst on Letrozole. I keep reading about avoiding them during treatment (I only took Vit D as instructed) but what about afterwards and into the future?

Here’s my dietary issue – I have a raft of allergies and intolerances.  This means I need to avoid dairy, egg, wheat, yeast, gluten and particularly nuts (anaphylactic to them). I am also veggie. This puts me essentially on a gluten free and nut free vegan diet BUT I can eat fish. I am going for whole foods as far as possible and trying to avoid processed food if possible (not always easy when cooking for the family).  I am wanting to make sure I am getting the vits and minerals I need but am becoming a bit paranoid about doing anything that will affect the (post) cancer treatment.

I’ve had surgery, chemo and radio. Chemo finished in February. Rads finished in April. I am on Letrozole and currently Adcal (Vit D and Calcium from the hosp for a month following bisphosphonate infusion).

My digestive system has been a bit of mess for years, hence me now trying to stick to the above diet to sort things out. I am convinced that I was not absorbing a lot of my food properly due to years of IBS type symptoms so had intolerance testing done to try and work out what I was intolerant to, in addition to my nut allergy. Chemo and multiple courses of antibiotics then seemed to wreck what was left of my digestive enzymes.

Here is what I want to take (and have started taking but want to check its all OK):

  • Good bacteria (acidophilus tablets)
  • Ongoing Vit D (and might need some calcium as I don’t eat dairy) Oncologist has said that Vit D is fine to take.
  • B12 or a B complex (as B12 only found in animal products)
  • Occasional Omega 3 (except when I am eating oily fish – or could just increase the oily fish consumption a bit instead)

Since starting the above it is fair to say I have seen a huge improvement in my digestion but I am just wanting to check I am not jeopardising the ongoing breast cancer treatment (Letrozole).

My oncologist is very nice but I cannot get to speak to him without going via my BCN who is very busy and not really interested in dietary queries. So I am bit stuck and worrying about this.

I am wondering what, if any, supplements people are taking and what your oncologists have advised you about this? 

Maybe I need my own nutrionist!? (if only money would allow..)

Thanks very much. Sending virtual hugs to you all x 

  • FormerMember
    FormerMember

    You can request to talk to a cancer dietician through your BC nurses. I did.. and it was sort of helpful, but I still have a lot of questions. Some advice seemed a little contrary... for example she told me to take evening primrose oil, which I have since found out shouldn't be taken post BC. I'm veggie.. so am taking a B complex, and vit D., but I'm not sure if I should be either!! Sorry... no answers I'm afraid... but I am very interested!!! 

  • FormerMember
    FormerMember in reply to FormerMember

    https://www.medicines.org.uk/emc

    Point up tone5Point up tone5Point up tone5

    Hello ladies, this website is very useful for looking up medicines and checking what might interact with them. Also, the Macmillan site has a dietitian that we can contact for advice. 

  • Thank you and for your replies. That is a very useful website noswad1 thank you. I didn't realise we had access to a cancer dietician via BCN. The post cancer "moving on" stuff seems to have not happened at all for me due to Covid, things have just fizzled out. I might call my BCN to ask about that though. I might also post a query to the Macmillan dietician so if you are interested as a fellow veggie, Flowerhappy, I can send a direct message to you if I find out anything useful. Sending virtual hugs x 

    "Hope, it is the only thing stronger than fear." (President Snow - The Hunger Games)