Hi everyone
Hope you are all doing OK today. Just wanted to get some opinions on Vitamins after active treatment and whilst on Letrozole. I keep reading about avoiding them during treatment (I only took Vit D as instructed) but what about afterwards and into the future?
Here’s my dietary issue – I have a raft of allergies and intolerances. This means I need to avoid dairy, egg, wheat, yeast, gluten and particularly nuts (anaphylactic to them). I am also veggie. This puts me essentially on a gluten free and nut free vegan diet BUT I can eat fish. I am going for whole foods as far as possible and trying to avoid processed food if possible (not always easy when cooking for the family). I am wanting to make sure I am getting the vits and minerals I need but am becoming a bit paranoid about doing anything that will affect the (post) cancer treatment.
I’ve had surgery, chemo and radio. Chemo finished in February. Rads finished in April. I am on Letrozole and currently Adcal (Vit D and Calcium from the hosp for a month following bisphosphonate infusion).
My digestive system has been a bit of mess for years, hence me now trying to stick to the above diet to sort things out. I am convinced that I was not absorbing a lot of my food properly due to years of IBS type symptoms so had intolerance testing done to try and work out what I was intolerant to, in addition to my nut allergy. Chemo and multiple courses of antibiotics then seemed to wreck what was left of my digestive enzymes.
Here is what I want to take (and have started taking but want to check its all OK):
Since starting the above it is fair to say I have seen a huge improvement in my digestion but I am just wanting to check I am not jeopardising the ongoing breast cancer treatment (Letrozole).
My oncologist is very nice but I cannot get to speak to him without going via my BCN who is very busy and not really interested in dietary queries. So I am bit stuck and worrying about this.
I am wondering what, if any, supplements people are taking and what your oncologists have advised you about this?
Maybe I need my own nutrionist!? (if only money would allow..)
Thanks very much. Sending virtual hugs to you all x
You can request to talk to a cancer dietician through your BC nurses. I did.. and it was sort of helpful, but I still have a lot of questions. Some advice seemed a little contrary... for example she told me to take evening primrose oil, which I have since found out shouldn't be taken post BC. I'm veggie.. so am taking a B complex, and vit D., but I'm not sure if I should be either!! Sorry... no answers I'm afraid... but I am very interested!!!
https://www.medicines.org.uk/emc

Hello ladies, this website is very useful for looking up medicines and checking what might interact with them. Also, the Macmillan site has a dietitian that we can contact for advice.
Thank you and for your replies. That is a very useful website noswad1 thank you. I didn't realise we had access to a cancer dietician via BCN. The post cancer "moving on" stuff seems to have not happened at all for me due to Covid, things have just fizzled out. I might call my BCN to ask about that though. I might also post a query to the Macmillan dietician so if you are interested as a fellow veggie, Flowerhappy, I can send a direct message to you if I find out anything useful. Sending virtual hugs x
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