Lymphovascular invasion & positive nodes...survivers

Hi,

I had 14/18 nodes positive and I am here doing ok 4 years later. 

Cwtches, 

Gay xxx

Hi Gay

That's brilliant news..I'm struggling to find success stories with this diagnosis...do you know anything about lymphovascular invasion xx

I had 11/11 nodes positive and LVI.....just had 2 year check...all good so far!

Hi Cloverfield1

I have just finished my treatment. I started treatment with six rounds of chemotherapy. This had a massive effect on the lump and so I was offered a lumpectomy. My nodes were checked and were clear. However the pathology of the breast tissue showed LVI and so it was recommended I had a mastectomy. I too was worried about this finding but two consultants assured me my prognosis remained the same as before the discovery of LVI. I did question this as I have read on this site that LVI can be tricky but they were confident that I would be ok. From my understanding and I am no expert there are various types of LVI . I have read a few other articles about it and there is a variety of opinions as to how it affects prognosis. I presume it’s again due to everyone being different and everyone reacting in different ways. Note that the NHS predict site does not ask about LVI. I am sure they are giving you appropriate treatment.
After surgery I had radiotherapy and probably due to the pathology results the radiotherapy was to my nodes as well as breast area. 
So I try not to worry about it.

Press your consultant to tell you more. And tell them of your concerns. It can’t be so easy talking to them via telephone at the moment but hopefully soon you will get to speak to them face to face. If you are undergoing chemotherapy this will probably be making you feel unwell and so less confident about things. Stay strong. I do think many women have this diagnosis and are still here for a long long time. 
It’s lovely you have your little boy. He will be a wonderful distraction and keep you smiling. Give him lots of cuddles and try not to worry - easier said than done I know. 
Love Jojodot X

That's brilliant thankyou...can you remember if you had LVI x

H

Thankyou so much for your reply..I have 3/4 nodes effected & thought LVI was the same until I read the letter again...I think the secret is "Bin" the letters...yes I've done the same googled & am getting conflicting answers some say it's a strong factor in prognosis & others not...I would hope the if the full breast is removed then the cancerous tissue is also...I am very small breasted & tumour was 4cm so I didnt have a choice between lumpectomy & mastectomy but tbh I'm glad about that.. get rid of the lot...I had full node removal but thankfully no need for you if no sign of cancer in them also I found it's a much more difficult re recovery than a mastectomy..I'm mid way through chemo weekly paclitaxel now which isnt bad then I've radiotherapy also to 3 areas....yes my little boy is gorgeous  & a blessing as I got married at 42 & had him an only child naturally at 44 so you can imagine how devastating this news was for me...thanks so much for your support

Clare xx

Hello - just want to say - i had 23/23 lymph nodes all positive - i was utterly crushed and terrified.  That was 2 years ago. i have since had some aches and pains checked out with a PET scan which showed joyfully that i am still all clear. I spent much of last year in anxiety but i also can see that slowly ebbing away and i am able to live much more in the moment (i have had some light talking therapies which helped).  It was a terrible journey but i am grateful for every day and every nonsense thing that i would have found boring or annoying before. The oncologist said to me in my most anxious moments - just go and live your life.  I wanted to hit him at the time for being so simplistic, but now i see it was the best advice.  Try and try again to bring yourself back to today and not look at 'how long might i have" which is something no one actually knows. Eventually the effort starts to pay off. Look after yourself, live healthily and throw love around as much as you can.  Hugs and love to all - you're all brilliant!! 

Hi Miss Wolfie, this is such a great message. I had my lumpectomy Just over a week ago and preparing now for 6 round of chemo then radiotherapy after that. Hearing you speak two years on is very motivating. Thank you xx

Hi Caz Sending you love and big hugs! You’re in the middle of all the worst bits but it will soon be in the past and you’ll be watching yourself get back to health. Xxxxx

Good morning all 

dear Cloverfield1

It’s now 3 years since I was first diagnosed ( see my profile ) all’s well . 
I met a friend who I hadn’t seen  for years and she says “ Oh my mum had breast cancer when she was in her 40s , I still miss her as she died at 94 !!!!  Her neighbour was diagnosed at the same time and she too lived well into her 90s “ 

well treatment back then wasn’t anything like it is now ,. If I live to my 90s I’ll be more than happy . 

Also 2 ladies at my aqua aerobics class ( when will we get back to that ???) are both 13 and 18 years since diagnosis and mastectomies. 

remember you can phone the helpline on here , they are wonderful and can explain things in a clear and positive manner . They are so knowledgeable and you can ask about any silly but worrying doubts , no question is silly if it worries you . 

I feel for everyone going through treatment in these times . My husband and I “ran”’away a few times while waiting for results - we ran away to Tenerife and nice Hotels here . But we also enjoyed the closeness of tea and toast in bed at 3am , cuddles and tears . Long days in pjs , watching tv etc . 

take care and be kind to yourself . 
remember phone the helpline , I did in tears a few times. . 
love 

Ruby Rose