HEP2 diagnosis!

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Hi everyone, I have just been diagnosed this week with HEP2 and I am due to go for a lumpectomy next week and I have been told that I will need to have a round of chemotherapy and radiotherapy as part of my treatment plan. I was wondering people’s experiences of HEP2 and the treatment process... I am a single parent of a lively 10 year old so I am worried about my energy levels during treatment and I will need to rally around friends for help I think! I also have a diagnosis of kidney cancer (the two are not related) so I am hoping that the surgery will also take place!!!  

I will take time to look through everyone’s posts for info and advice re how best to prepare for the time ahead and what to possibly expect! 

Thanks in advance for your comments! 

Fiona xx

  • FormerMember
    FormerMember

    Sorry to read about your HER2+ diagnosis.   Think the HEP is a typo Slight smile

    Welcome to the Breast Group Fiona  / - I'm sure the lovely ladies here will help out with any surgery tips and advice.

    Meanwhile you could check out the "Surgery" thread here. It goes back 18 pages so you may need to cherry pick those covering lumpectomy over mastectomy.

    Hope this is of some help to get you settled in, G n' J

  • FormerMember
    FormerMember

    Hi, 

         Sorry to hear your news. I’m HER2 positive you can read my profile. I’m married with a 10 year old girl and 7 year old boy. I had a lumpectomy and sentinel node biopsy in February. Was in as a day case my mum came to visit from Scotland so she could do the school run and my husband went to work. 

    I didn't have too much pain just kept taking the regular pain medication. You can’t drive for 10 days to 2 weeks you’re Consultant will let you know. Just have lots of easy meals to make and get food in so you don’t have to think about it. I felt tiried and had some naps during the day. I know this will be hard as when I had my surgery my kids went to school so I could rest. 

    I found the surgery better than the chemo for energy levels. Hope you can get some help. 

    Good luck xxx

  • Thank you Gail, I am glad that you are doing well and that you didn’t have too much pain after the operation, I am getting a sense that my energy levels will be tested more with the chemotherapy treatment and I am waiting to hear if my kidney surgery will take place at the same time! Hope you and your family are all well! 

    Fionaxx 

    ps I am from Scotland and live in Glasgow! 

  • FormerMember
    FormerMember in reply to Fiona068

    Hi Fiona 

                I’m from Glasgow moved to Great Yarmouth 2003 my husbands from here. Nice to meet you unfortunately not great circumstances. I find this site great for advice and lovely friendly ‘kindred ‘ spirits. 

    I found surgery a lot easier than chemo. It depends what chemo you get what the side effects are and also we’re all unique so get different effects. Before chemotherapy just stock up on things I.e paracetamol gingernuts lip balm soft toothbrush laxatives loperamide nail polish to protect nails baby shampoo there’s loads of tips on here etc. Theychemo nurses give you loads of advice and a big bag of medicine Also you get medical excemption card and your meds all free. One step at a time . Hope that helps and remover we’re all here to answer questions and support each other . Take care xxx