I’m going for my second cycle of chemo on Friday, for breast cancer, on Friday.
first cycle has been okay, feeling positive overall and pleased I have a cycle under my belt so that I know a bit more about what to expect in the next two cycles.
i have been sad about hair loss though, I feel despite the cold cap (and I know it’s not always successful) that my hair is coming out in handfuls and despite knowing it was a possibility, the reality has been hard.
tonight I was reading to my daughter, she’s five and we have been working our way through the Mr Men books, and this made me smile and it was extremely well timed - very wise words indeed
Hi and a very warm welcome to the online community
I can see that you joined the community about 3 weeks ago but that this is your first post to the group so I didn't want it to be left with no response.
I'm glad to hear that your first cycle of chemotherapy went well and I hope you've had a similar experience with yesterday's.
I totally agree with the sentiments in that Mr Men story. I didn't have chemo for my type of cancer but I have been left with a large scar. I take the view that my scar doesn't matter as I'm still the same person
All the best x
Hi, @Ct6574 what a wonderful page to have read at this exact moment. Thank you for sharing I had forgotten how wise the little misses and Mr Men could be.
I'm on day 16 after my first EC chemotherapy I cut my long hair to chin length in preparation and I think it's starting to go today. Nothing can prepare you for the emotional side of hair loss but we will all deal with if it happens because we must.
Stay safe and thank you
Audrey xxx
Hi my head is just starting to tingle, does this go away once you have shaved or lost your hair?
Audrey xxx
I don't have breast cancer but my cancer is treated with some of the same chemo drugs. My scalp became more sensitive once I lost my hair and tingles a lot now that my hair is starting to grow back.
The biggest surprise was how much a bald scalp sweats.
Hi,
I got this after starting chemo. I used the cold cap my hair got really thin ? Lost 8O% off it. Head felt really tingly itchy sensitive and very annoying. Hair growing back now and those sensations have gone. However started my second lot of chemo as had neoadjuvent chemo then surgery and now back to chemo. So just waiting to see what happens to my hair. One down 2 to go and using cold cap xxx
I had no idea of the joy that is moisturising my mostly bald head! It just helps it feel better. I guess the skin feels tight or dry without hair to cover it?
I’m day 19 of my 1st Chemo cycle. My hair has been falling out for a few days but I had a shower this morning and it was like something out of a horror film. There was hair everywhere! I didn’t realise I would feel so upset by it. I really wish I’d shaved my head now but I think I was in denial. Too late now as my head is quite sore. There’s a lot more to lose yet so I hope it comes out quickly.
At what point do you decide your hair is falling out enough to take more drastic action. I’m sure I will find it so much less distressing when I don’t have to think about it any more and can shower without thinking about it.
but then I look at the hair in my head and think, is it so bad? I’ve ordered some scarves and some bandanas, maybe I will decide when they turn up!
I suppose it’s what you want . I’m 46 with an 11 year old and 7 year old boy. I don’t want people knowing I’ve got cancer all the people at my daughters dancing , school etc that helps me cope.
With cancer I had neoadjuvent chemo which shrunk the tumour but unfortunately the margins weren’t clear so had x3 surgery and have had a masectomy. Now getting my next lot of chemo then radiotherapy.
It’s such a long journey I was diagnosed in October 19 with so much waiting. So for me using the cold cap will help my hair grow back quicker and getting on with my life. I’ve got a nice wig soft hats and wear baseball caps in the garden.
I suppose my advice is be prepared but just go with what you can deal with. Xxx
My dilemma is the same,at what point do u shave? While it is hurting or do you wait I'm not sure. As the day wears on my scalp is getting very tender will it be less so if I shave?
Audrey xx
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