Getting in a Tizzy over Starting PAC 4/6

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Any one out there have experience of PAC chemo. Spoke to oncologist today to start thurs following 4 cycles of EC and I’m filled with dread over the pins and needles side effects. Any advise? 

  • FormerMember
    FormerMember

    Hi 

    Some of the B vitamins are supposedly good at easing the risk of PN

    There are several here who have taken (mostly) B12 and/or B6 don't know if this was during chemo or after.

    You should phone and run it past your onco to find out if they OK these first though.

    You could ask this question in the June BC Chemo discussion too as some of the old hands there may have taken B12 during chemo ?

    Good luck for Thursday, G n' J

  • Be extremely careful taking vitamins during chemo as they can make it less effective. Cooling your hands and feet can help. www.breastcancer.org/.../supplements-before-and-during-chemo-risky

    Though to be fair I'm taking them post chemo, though took nothing during it.

    If you find that you are struggling they might offer weekly,  which I had because of concerns,  but it takes an extra month to do if you complete it.  Also tell your oncologist and/or BN if you have any issues.

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Hi

    I am assuming pac is paclitaxol? I had a 12 weekly course of this , I never had pins and needles but towards the end developed several side effects- all of which were bearable and I think I was unlucky to have so many. But they all disappeared apart from my nails being extremely weird.

    As says you shouldn’t take any medication without your oncologists approval , mine said vitamin d were the only vitamins I should take but you really need to check with them.

    Best of luck 

    Jo x

  • FormerMember
    FormerMember in reply to Kimbo56

    Hi, I had 9 weekly Paclitaxel...I coped much better with weekly doses than I did with 3 weekly FEC. I didn't get any significant neuropathy...just a 'fizzy' feeling in my feet which resolved quickly.

  • Thank you for reply, I’m 2weekly.

    did you do anything to relieve the fizzy feeling

    i had my first dose today and so far much better that EC but just finding it hard to settle to sleep. Don’t know if it’s anxiety of waiting for reaction or something in the pre meds I was given. 

  • I read your story and wondered if I could ask how your radiotherapy went. It is part of my plan after chemotherapy. I have already had my lumpectomy with one lymph node removed (clear) in dec19 and more Surgry to remove more of medial margin as cells were found in jan 20. I was diagnosed with Triple Negative Breast Cancer.