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FormerMember
FormerMember
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  • 281 subscribers
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Just saying hello to you all, wishing lots of love and hugs in your journeys!

its all happened so fast for me; diagnosed at start of lockdown, lumpectomy and lymph came back good and just about to finish 3 weeks of radiotherapy. My head’s a bit mushed with it all - it was my first screen post turning 50 this year, no symptoms, nothing.... Yet here I am! and I know many of you will have had the experience of surgery and treatment in lockdown, basically all alone. It’s been sooo weird. It’s just not something I though would ever happen to me- stupid really....

Anyhow, looking forward to connecting with anyone whose gone through the same/similar route, and all you lovely ladies out there on this road xxxx

  • FormerMember
    FormerMember

    Morning 

    Warm welcome to just about the busiest group here....

    Just read  your profile and seeing as you have stopped your HRT thought this would help 

    Hope you are coping with the last of your Rads well ? Any issues there is the May Rads discussion Thumbsup tone2

    Hugs, G n' J

  • Hi BeauMum,

    My journey has been very similar to yours timing wise but I didn't have lumpectomy and sentinel node op until 30 th April.I am now awaiting phone call from Oncologist on Monday for details of radiotherapy. I have been told I will be having 5 sessions as per the new guidelines.

    Yes it is a major shock, and no less the second time around.! I had breast cancer 21and a half years ago but on the other side.Thanks to the wonderful treatment I received then I am now going through it again.I had 25 sessions of RT last time so the new regime will hopefully be less tiring not least because we wont have to travel for 2 or so hours to get to the radiotherapy unit.This time it is only a few minutes away by car.

    I'm glad you found this group it really is most helpful and supportive.And they understand from experience how you are feeling which however good the friend or family member they haven't had your experience!! Be kind to yourself and take it one step at a time now that you have "had" breast cancer. Sending big hugs to you . xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Haha that is the many shades of me !!

    fies anyone know if the sage or evening primrose capsules make a difference? Hot, Sleepless, toss n turn nights to be specific!! 
    thanks for the welcome 

    xxx

  • Welcome .  My story on my profile . It's a huge shock but this site is amazing for support .  

  • FormerMember
    FormerMember

    Hi @BeauMum 

    I was going for biopsies and ultrasound start of lockdown , then got a letter they were in clear and had to get more biopsies. Never heard anything for 3 weeks thinking my big lump was a cyst. Then Grint a letter to see a Mr consultant. I thought mmm maybe something but was still hopeful it was nothing. I was diagnosed with triple negative grade 3 breast cancer. had my op and took an infection so chemo been on hold but hoping third time lucky next week Grin.

    lots of great advice here from lovely people

     Wishing you lots of luck in your journey

    Sandra 

    xx

  • Hi

    welcome to the site best place for support and info . My. Story on profile just click on my name to read . 

    When all thus started I was just congratulating myself on getting my fitness back after op and then chemo ..looking forward to summer .

    Then Covid arrived and shut the door on me so now indoors since mid march thank god for garden and Herceptin injections every three weeks at least I get out to go to hospital lol Joy 

    Margaret 

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • FormerMember
    FormerMember

    Hi Wave 

    I too was diagnosed at the start of the lockdown. I had my lumpectomy on 4th April and am on day 3 of my 5 day fast forward radiotherapy treatment.

    It has been a whirlwind and along with the virus has been hard to cope with at times but I feel as though I am nearly there now.

    I am currently sat in the back garden in the dark with my boob (discreetly) on display trying to cool it down! 

  • Hello ,

    Welcome to the Forum, to the Group none of us wanted to join.... or even expected to.

    Thankfully, once you find this group you realise you will never be alone and will have friends that have gone though what you have, have answers to questions you haven't yet asked - basically find this group is like hitting the jackpot.

    A massive well done for how far you have already come, you have done so well and in a time that is crazy than any of us could imagine - a massive 'Well Done' Hugging

    Now is the time you start to slow down and realise what has just happened, because before you will of been whisked off into a whirlwind - the rollercoaster ride that none of us wanted to get on.

    If you have problems sleeping, there is a thread called 'AWAKE' - this is where many of us pop on when we can't sleep during the night hours and we are there again in the daylight hours.  Sometimes it can be quiet other nights it's party night - we are all mad and are now referred to as 'Fruit Loops' - if ever you need a laugh or have a niggling question lookout for the Awake thread - it might just help.

    In the meantime, again 'Welcome' - sending love and hugs xxx

    I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x
  • FormerMember
    FormerMember in reply to WhatHappened

    Thank you so much for that! I’m having real trouble finding my post and relying to the lovely people who’ve commented Rolling eyes 

    I will check that thread too thanks 

    big hugs to you xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Oh Sandra how bloody horrible for you! Wishing you lots of love and luck on your road to health my lovely xxxx