Black lines in my vision

Hi 

I'm 'tagging' Londonmumof2 as she had retina problems but I'm unsure if this was treatment related or coincidental.

I would however phone your Onco soon and ask about this - As it could be tied in with either late chemo (doubtful if you finished mid March)  Letrozole or Ibandronic.

Hope you get some answers soon and it is something temporary, G n' J

Thank much appreciate  xx

I'd go straight to A&E, preferably one specializing in eyes. I had a posterior retinal detachment a couple of months in from letrozole, and apparently AIs can rarely cause this as there is oestrogen in the eye.  It manifest as a stinging pain quickly followed by a bleed in the eye (I still have the remnants of the 'twig shape' floating around,  though fading,  and a slightly foggy (which has gone now). I went to Moorfields a&e, and after testing and diagnosis was meant to have an out patient's appointment,  but that's cancelled due to covid-19. They did say that if I developed a black area at the side like a curtain to get in a taxi to them, as it was probably a retinal tear which would require surgery. 

I stopped letrozole for 5-6 weeks after reading that it was most likely to happen then,  restarted again on alternate days,  and after about a month started to get flashing lights.  My left eye has been pink for a few days so I called my doctor and on my request he has given me Femara to see if it's any better, and I'm taking it every other day as well.  If that doesn't help I'm to try the AI beginning with E instead. Let us know  how you get on, and good luck!! X

Thanks for the speedy reply.

I'll 'tag' so she sees your reply pronto.

Cheers Londonmumof2  G n' J

Hi, 

I have had eye problems since my late teens. Various complications,  the causes can't always be determined but usually treated, they calm down and may reoccur with similar symptoms or something totally different. I have never had black lines so can offer no suggestion there but..............

More than one eye specialist has told me and the first ones were in Moorfields Eye Hospital.....' always go to have any eye problem checked immediately.  Never imagine it is not important.....We( the eye consultants) would rather see 9/10 people with no significant problem to deal with the one which left untreated might cause blindness.'

I have never forgotten this advice and always gone either straight to A and E or phoned an eye specialist. My advice to you would be to do that......if it's oncology who need to deal with you an eye specialist will fast track you and if it's coincidental, they'll deal with it.

I hope the problem is dealt with quickly and you can relax without the additional worry. I wish you well.

Love  Karen

At the moment I’m sat there n A&E waiting to see the Eye doctor xx

Let us know how you got on Hopefully they can sort it quickly xx

Okay I’m back home I’ve seen 2 doctors who have referred me to an eye specialist 

the eye specialist will be ringing me tomorrow to make an appointment 

Why does everything seem such a worry  it just feels like one thing after another 
thanks for all of your replies I really appreciate it xxx

Thank you so much Londonmumof2 

hopefully I’ll know more once I’ve seen the eye specialist 

hope you get a result soon xx

Good luck with the eye specialist, and thanks! Xxx