a date that I was focusing on came and went without celebration
it's been five years since diagnosis and my NHS loyalty card has now expired
a milestone I was supposed to celebrate with my friend Kacang but the lockdown has prevented any kind of travel
Part of me is a bit blazé about covid-19, I've had pneumonia a couple of times and got over it.
What we mustn't let happen is people to be reluctant to see their GP for screening over any concerns, early detection is VITAL. We need to normalise being breast aware to the same level as your beauty routines, manicure, pedicure, breast exam, get my roots done, breast exam. Moles too, I have an app that prompts me to look at a couple of slightly iffy moles. It's your body, it's your life.
Trust your instincts, I was told I was fine for more than three years, nothing to worry about, it's just your age and hormones. I'd not be here now if I hadn't had the option to pay for a private screening, firstly to establish I did have breast cancer but secondly I had to use the private MRI report to prove the surgeon had missed a whole tumour by neatly cutting around it.
What have I learned over the last five years ?
seize the moment, every day is valuable, don't wallow in self pity, don't hold on to anger, let it go (easier said than done)
move on, put it behind you but don't become complacent
I used this site to work through a lot of issues and I'm glad it's here, I found it therapeutic to try and help others going through the same emotions I had been. Confusion, anger, disbelief, blaming, bargaining, more anger, sadness, denial. Hauling the newbies into the lifeboats.
and 98% of people were so grateful and it felt good to be able to help with just a few words, sometimes more of an essay to be fair but talking helps and yes, I know it's a cliché but time really does help. Did you all see what happened with Italy giving us advice and then us giving the Americans advice over coronaviruses and the lockdown situations, some of my American friends were in free fall panic, now they've moved into a more practical phase.
2020 was going to be great, it's not turning out how it was supposed to but I'm feeling confident it will improve, it doesn't feel like it can get much worse
I'm still here, if anyone wants to ask anything use the @ Carolyn28
cheers everyone
Carolyn
xx
Hi Carolyn28 im ok thankyou I'm three and a half years on now and although I still get panic days I'm doing so much better. I get a bit stuck in grief for my care free days and sometimes anger but I work hard not too and try to count my blessings and enjoy the now xxx As you say time is a big help and gives a bit more confidence in my body .Lovely to see you are doing so well and still inspiring newbies x
Carolyn28 don’t be silly you celebrate away! It’ll be 7years since my diagnosis in August and 5years since my secondary diagnosis in November! Seriously where has that time gone!
I’m still on just the Zoladex injection every 3wks and as far as I know things are still Stable, CT is June 12th for Stable Mable again! I question myself so often as to whether I should of listened to the oncologist and started Denosumab and Letrozole BUT as Zoladex was working I didn’t see the point! I thought it was better to keep that for when I need it! So far so good!
Life has had its ups and downs! But I try to make the most out of every day. Of course I wish things had been different, but I’m still here and I am grateful for the amazing people I have met along the way!
You stay safe my friend. Look forward to celebrating your 10 year mark! With you and Kacang enjoying an amazing holiday together! Unless you do that before then! In which case it’ll be her turn to come over here and I’ll expect a visit from you both xxxx
real life success stories to remind you that people do survive breast cancer
https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457
Dr Peter Harvey
https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf
stable is good
it's got to be the mental aspect that's most challenging, it took me ages to renew my railcard
does your liver play up at all ? a friends wife is on long term medication and she has to stop every now and then to allow her liver to recover
I wondered if some kind of liver cleansing tea might help but I don't suppose anyone has done studies on it
Carolyn
xxx
real life success stories to remind you that people do survive breast cancer
https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/115457
Dr Peter Harvey
https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf
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