Hi everybody, I hope everyone is doing well considering these stressful times with Covid. I met with my surgeon for the first time since having my grade 3 advanced breast tumour removed at end of last year (I think). The oncology team pulled ”the plug” on my chemo as I was having a horrendously reaction to it and passing away for a few mins to which my partner was guided how to give CPR and luckily brought me back.
I now have been told that I have BRACA1 genes which caused the breast cancer and has been passed from my dads side, my paternal gran and aunt. Who both had the same. I'm sorry for gambling on here guys and hope I'm making sense.
My surgeon had advised that I could have what is called a finalisation mastectomy on the same breast, and this would save me needing radiotherapy, and he explained that having BRACA1 mutation of the genes meant that I could end up getting a new can't but in the other breast. So I proposed that he gave me a double mastectomy, which he called would be a preventive procedure on the left one. Also he thought it was a sensible decision. But he had to go back to his ppl and pose my decision to them and get it authorised. To let understand, I'm not a vain person. If I could I would wear my pyjamas all day everyday if I could. What u see is what u get kind of thing. But my hair falling out really traumatised me, and my face for over a year is all sores and spots between me picking with nerves and ingrown hairs. I for the first time ever feel absolutely hideous. So the though of just having one breast just wasn't ever going to make me comfy.
What the surgeon did say is that reconstruction at this time won't happen and maybe down the line we could speak about. But because of this mutated gene thing I'm never going to ever get to 0% out of being cancer free. This has just blown my world apart and can't seem to understand any of this. I've never processed the journey from the start and it just seems that it gets worse everytime I meet with all the team. Now I just don't know what or how to cope. Me wee 82yr old granny said. Don't be right now Pam. U have came through so much already to get scared now. And I needed that I suppose.
Has anyone got any advise old. As I'm a hot mess
Thank you guys
