I would like to tell you that you should not always accept what you are told by the so called experts as being true and accurate. Initially I was diagnosed as HER2 positive the ICH test had me down as +2 Borderline so it went to FISH test and came back positive but I recall my oncologist mentioned the report said it was marginal. Remember now you don't need chemo and you don't need Herceptin if you are HER2 negative. I did my homework and discovered that it is commonplace to get different results from different technicians and different laboratories. Consequently I asked for a HER2 retest using a different lab. Lo and behold it came back ICH Borderline but FISH test negative. Now because I was ER positive but HER2 negative I became eligible for the Oncotype DX test and that also confirmed I was HER2 negative. If I had not pushed for the retest I would now be going through chemotherapy for 4 1/2 months with 3 weekly injections of Herceptin for 12 months and probably losing my hair all for absolutely no benefit whatsoever!"
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007