I feel like im going mad

FormerMember
FormerMember
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Hi, I dont know what in expecting from writing this but I currently feel like I'm about to crumble. I had my 2nd dose of chemo on Friday, took a bit of a reaction which was quickly sorted and told common on the 2nd dose of docetaxel. Went home feeling ok like the 1st. Started feeling groggy, foggy like I was in slow motion but not too bad. Woke feeling the same the next morning but ok. Took the white blood cell injection 24hours after chemo and was ok I suppose, few hours later I started to feel sore,  but like every bone and muscle in my body hurt. My skin was sore to touch, even a hug from my hubby hurt and I felt like I was in a dream is the only way to describe it. Having waves of feeling ok and strong but all is takes is a twinge, needing to clear my throat ( feels like my sinus and throat are bunged) to make me go from ok to fearing that I might suddenly die. My little 5 year old who is very clingy to me said he had a sore throat and immediately my fear is back and hes breaking his heart now that I said I should stay away. I feel like I'm falling apart not just physically but emotionally. Up to this point everyone has been telling me how positive and strong I am and how they cant believe I'm handling all of this  but I so dont feel like that, I'm covering, I'm faking, I'm so unbelievably scared and I'm finding it hard to get myself on top of this again. When the sore throat of a 5 year old has me in bits.... I'm sorry as I have read posts from people really struggling and I an so so fortunate for the unbelievable support, love and luck that I have in life, I shouldn't be lying here gurning and crying but I feel a bit lost atm. Im losing who I am and I'm upsetting my boys and I dont know what to do. I feel ill one minute,ok the next, is it in my head or not. I read side effects of pain and nausea etc and it's normal  but then read something else that says call a doctor asap if you start to feel nauseous or in pain. I'm going by temperature atm as I think I'm driving myself mad. 

  • Hi Patsy38                                                                                                                                                                                                                                                  I was saddened to read your message,its all just so new to you at the moment. Firstly lets talk about how you are feeling you say you have had chemo a few days ago and you don,t feel well,it might be a good idea to contact your breast care nurse and tell her about your health concern also contact your oncology department for further advice.I am not qualified to give you any advice but i would definitely ask for some to put your mind at rest. We all feel like we are falling apart emotionally from time to time this is perfectly normal for anyone dealing with cancer, i know i do on a regular basis.This might sound odd but crying is good for you, you need to get it out its good for your soul.I am in the incurable group and know all about emotions being all over the place.Its hard when you have small children they don,t understand whats going on with their mom and they get scarred all you can do is reassure them and give them a big hug.I have asked my family and friends not to use the word positive or how strong i am in dealing with my cancer, because i think that i have to live up to it and at the moment i cant always do that. We all deal with our health issues differently, mine was and still is a bad day were i cry at anything and a better day were i am a little better.All these thoughts we have about dying, and leaving our families,are ok to have.First things first sort out why you are feeling unwell,if you fell poorly everything else seems worse,someone told me to STOP and BREATH and that was good advice.I hope you get this sorted soon and please try to keep calm this will get sorted i promise.This forum has a lot of kind, helpful, sincere,people who will reach out to help you we all try to here for each other.If i can help in any way i will always offer my support Keep Well and Safe xx

  • FormerMember
    FormerMember

    Hi, 

         Sorry to hear you’re having a rough time. I had a reaction to the docetaxel on my second dose also. They were able to continue giving me it just had IV hydrocortisone before giving me IV hydrocortisone on my 3rd dose and was ok. Also those filgrastim injections made my legs ache they affect the long bones in your legs. After discussing with oncologist changed it so-

    1st chemo took filgrastim injections on day after chemo at 20.00 5 doses- was in agony stomach and leg pain

    2nd 3rd and 4th chemo took filgrastim injection 3 days after chemo was a lot better only took 3 doses each time. All this was discussed with my oncologist. Also I took my steroids at a reduced dose for longer this helped with my pain also discussed with oncologists

    hope thus helps chemotherapy exhausting and affects us all differently. I just kept tweaking things and it did get better 

    take care

    Grunchy xxx

  • FormerMember
    FormerMember in reply to wino

    Hey, thank you do much for replying, I've contacted the doctor like you suggested so I'm just waiting for a call back. I just seemed to find the emotions really hard to handle and to maintain the upbeat positive attitude people look from me if that makes sense. I took your advice to just stop and breathe and you are 100% again. Thank you for helping me, stay safe xxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Gail, sounds just like what happened to me too. I didn't realise I could potentially switch things around to help. I will speak to my oncologist about what I can do on the injections etc. Take care and thanks very much xxx

  • Hi ,

    those Filgrastim effects can also be helped by taking a daily dose of Loratidine (brand name is Claritin) beginning the day before you give yourself the first injection. It helps with the bone pain (no idea why or how, but it’s just that antihistamine!) 

    sending big hugs, sounds as if you really need them xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Hi

    aww sweet I think our family and friends dont know what else to say so the " keep strong , stay positive " is the only thing they think helps. Even though this statement comes from a place of love and caring. It's really not what we need to hear sometimes. No one who asnt had the dreaded diagnosis can imagine the torment we feel on a daily basis. The fear and the what ifs. 

    Just take each day as it comes , if your In pain ask for help , whether that's from family or your bc team.  Have time to mend emotionally and physically,  if you want to cry then cry , if you want to shout then shout and if you want to rant at the world then do so. 

    Hope the oncologist comes back with a suggestion to help you. 

    Take care stay safe 

    Julie 

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Julie, I really appreciate you replying. I'm feeling a little bit better today so just need to take it as it comes and cut myself a bit of slack every now and then lol

    Take care Julie and stay safe xx

  • FormerMember
    FormerMember

    Hi

    I just wanted to say thank you. Your post covered just how I have been feeling. I'm a touch more positive about what I can do now 

  • FormerMember
    FormerMember in reply to FormerMember

    Hey,

    I'm glad it has helped and it helped me posting it. I'm back in for the next chemo session today so I'll be feeling like that again shortly but it doesn't last forever. I felt really bad a few days then it just seemed to gently ease.

    Take care and just message if you need a chat. Xx

  • Hi , missed you original post but just wanted to say I had exactly same thing when I switched to docetaxel. "Brain fog" for a few days and aches and pains from the filtration injection but it did pass. I've also been much more emotional on this one, but that could be combination of coronavirus on top of everything else. If your upset it's what you need to feel, don't try and bottle it up. Sometimes you feel better after a good cry. A nice long shower while you get it out of your system works for me then I can put on a brave face again. And there are times when I feel genuinely ok and happy . Don't be afraid to tell the team if your struggling to cope. Good luck xxx